by Tracie White
Hillenbrand, Laura. “A Sudden Illness.” New Yorker. June 30, 2003.
Holmes, Gary P. “A Cluster of Patients with a Chronic Mononucleosis-like Syndrome.” Journal of the American Medical Association 257, no. 17 (1987): 2297–2302.
Holmes, Gary P., Jonathan E. Kaplan, Nelson M. Gantz, et al. “Chronic Fatigue Syndrome: A Working Case Definition.” Annals of Internal Medicine 108 (1988): 387–389.
The Human Genome Project. National Human Genome Research Institute. genome.gov/human-genome-project.
“In Memoriam.” CFIDS/ME Patient Memorial List. National CFIDS Foundation. 2015. ncf-net.org/memorial.htm.
“Is That What’s Wrong with Me?” 20/20. ABC News. July 31, 1986.
Johnson, Cort. “Dr. Nancy Klimas on Her New Clinic and More.” Phoenix Rising ME/CFS Forums. June 17, 2010. forums.phoenixrising.me/threads/dr-nancy-klimas-on-her-new-clinic-and-more.59550.
Johnson, Cort. “Urgency: Ron Davis and His (Non-NIH Funded) ME/CFS Collaborative Research Center.” Health Rising. December 22, 2017. healthrising.org/blog/2017/12/21/urgency-ron-davis-chronic-fatigue-research-center.
Johnson, Hillary. “Journey into Fear.” Rolling Stone. August 13, 1987.
Johnson, Hillary. “Journey into Fear: Part Two.” Rolling Stone. August 13, 1987.
Johnson, Hillary. “Osler’s Web 2.0!” OslersWeb.com. Accessed February 28, 2020.
Johnson, Hillary. Osler’s Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic. Lincoln, NE: iUniverse, 2006.
Jones, James F., C. George Ray, Linda L. Minnich, et al. “Evidence for Active Epstein-Barr Virus Infection in Patients with Persistent, Unexplained Illnesses: Elevated Anti-Early Antigen Antibodies.” Annals of Internal Medicine 102, no. 1 (January 1985): 1–7.
Kashi, Alex A., Ronald W. Davis, and Robert D. Phair. “The IDO Metabolic Trap Hypothesis for the Etiology of ME/CFS.” Diagnostics 9, no. 3 (July 2019): 82.
Khazan, Olga. “The Tragic Neglect of Chronic Fatigue Syndrome.” Atlantic. October 15, 2015.
Klimas, Nancy G., Fernando R. Salvato, Robert Morgan, and Mary Ann Fletcher. “Immunologic Abnormalities in Chronic Fatigue Syndrome.” Journal of Clinical Microbiology 28, no. 6 (June 1990): 1403–1410.
Komaroff, Anthony L. “Advances in Understanding the Pathophysiology of Chronic Fatigue Syndrome.” Journal of the American Medical Association 322, no. 6 (August 2019): 499–500.
Komaroff, Anthony L., and Tracey A. Cho. “Role of Infection and Neurologic Dysfunction in Chronic Fatigue Syndrome.” Seminars in Neurology 31, no. 3 (July 2011): 325–337.
Krieger, Lisa M. “Living with COVID-19 When It Won’t Go Away.” Mercury News (San Jose, CA). June 27, 2020.
Land, Stephanie. “The Love of a Thousand Muskoxen: Grieving a Love Lost to Time and Sickness.” Longreads. October 24, 2016. longreads.com/2016/10/24/the-love-of-a-thousand-muskoxen-grieving-a-love-lost-to-time-and-sickness.
Mariani, Mike. “A Town for People with Chronic-Fatigue Syndrome.” New Yorker. December 20, 2019.
Maxmen, Amy. “A Reboot for Chronic Fatigue Syndrome Research.” Nature. January 3, 2018.
Mays, Patricia. “CDC Diverts Chronic Fatigue Funds.” Associated Press. July 6, 1999.
McManimen, Stephanie L., Andrew R. Devendorf, Abigail A. Brown, et al. “Mortality in Patients with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome.” Fatigue: Biomedicine, Health Behavior 4, no. 4 (2016): 195–207.
Mertz, Janet E., and Ronald W. Davis. “Cleavage of DNA by R1 Restriction Endonuclease Generates Cohesive Ends.” Proceedings of the National Academy of Sciences 69, no. 11 (November 1972): 3370–3374.
Metabolon. “Ensuring You See What Matters Most.” Metabolon.com. Accessed March 7, 2020.
Mukherjee, Siddhartha. The Gene: An Intimate History. London: Bodley Head, 2016.
National Academy of Sciences. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. 2015. iom.nationalacademies.org/Reports/2015/ME-CFS.aspx.
National Institutes of Health. Office of Budget. officeofbudget.od.nih.gov/index.htm.
Open Medicine Foundation. Financial Information. omf.ngo/f-info.
“Paul Berg: Facts.” The Nobel Prize. nobelprize.org/prizes/chemistry/1980/berg/facts. Accessed March 7, 2020.
Phoenix Rising: Supporting People with Chronic Fatigue Syndrome (ME/CFS). phoenixrising.me.
Prior, Ryan. “He Pioneered Technology That Fueled the Human Genome Project; Now His Greatest Challenge Is Curing His Own Son.” CNN. May 13, 2019. cnn.com/2019/05/12/health/stanford-geneticist-chronic-fatigue-syndrome-trnd/index.html.
Prior, Ryan. “Viewpoint: Telling the Hidden Story of Chronic Fatigue Syndrome.” USA Today. June 10, 2013.
Rehmeyer, Julie. Through the Shadowlands: A Science Writer’s Odyssey into an Illness Science Doesn’t Understand. New York: Rodale, 2017.
Rehmeyer, Julie, and David Tuller. “Why Did It Take the CDC So Long to Reverse Course on Debunked Treatments for Chronic Fatigue Syndrome?” STAT. September 25, 2017. statnews.com/2017/09/25/chronic-fatigue-syndrome-cdc.
“Ronald Davis.” Gruber Foundation. 2011. gruber.yale.edu/genetics/ronald-davis.
“Ronald W. Davis.” Stanford Profiles. profiles.stanford.edu/ronald-davis?tab=publications. Accessed February 1, 2020.
Rutherford, Adam. “DNA Double Helix: Discovery That Led to 60 Years of Biological Revolution.” Guardian. April 25, 2013.
Ryan, Frank. The Mysterious World of the Human Genome. Amherst, NY: Prometheus Books, 2016.
“Severely Ill Patient Study.” Open Medicine Foundation. November 27, 2019. omf.ngo/2019/11/27/severely-ill-patient-study-study.
Shreeve, James. The Genome War: How Craig Venter Tried to Capture the Code of Life and Save the World. New York: Ballantine, 2005.
Snyder, Kim. I Remember Me (film). 2000. web.archive.org/web/20071212104112/http://irememberme.com/.
Stanford Magazine. “Tiny Tools for Detangling DNA.” September 2000.
Steinbrook, Robert. “160 Victims at Lake Tahoe: Chronic Flu-Like Illness a Medical Mystery Story.” Los Angeles Times. June 7, 1986.
Stephens, Joe, and Valerie Strauss. “Retaliation Alleged at CDC.” Washington Post. August 6, 1999.
Straus, Stephen E. “Chronic Fatigue Syndrome.” British Medical Journal 313 (October 1996): 831.
Straus, Stephen E., Giovanna Tosato, Gary Armstrong, et al. “Persisting Illness and Fatigue in Adults with Evidence of Epstein-Barr Virus Infection.” Annals of Internal Medicine 102, no. 1 (January 1985): 7–16.
Straus, Stephen E., Janet K. Dale, Martin Tobi, et al. “Acyclovir Treatment of the Chronic Fatigue Syndrome.” New England Journal of Medicine 319 (December 1988): 1692–1698.
Straus, Stephen E., Janet K. Dale, Ralph Wright, and Dean D. Metcalfe. “Allergy and the Chronic Fatigue Syndrome.” Journal of Allergy and Clinical Immunology 81 (1988): 791–795.
Strauss, Valerie. “Audit Shows CDC Misled Congress About Funds.” Washington Post. May 28, 1999.
Tan, Siang Yong, and Yvonne Tatsumura. “Alexander Fleming (1881–1955): Discoverer of Penicillin.” Singapore Medical Journal 56, no. 7 (July 2015): 366–367.
Tucker, Miriam. “CDC Launches New ME/CFS Guidance for Clinicians.” Medscape. July 13, 2018. medscape.com/viewarticle/899316.
Tuller, David. “Chronic Fatigue Syndrome and the CDC: A Long, Tangled Tale.” Virology Blog. November 23, 2011. virology.ws/2011/11/23/chronic-fatigue-syndrome-and-the-cdc-a-long-tangled-tale.
Unger, Elizabeth. “Chronic Fatigue Syndrome: It’s Real, and We Can Do Better.” Medscape. February 25, 2019. medscape.com/viewarticle/908622.
United States Centers for Disease Control and Prevention. “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Possible Causes.” cdc.gov/me-cfs/about/possible-causes.html. Accessed August 13, 2020.
Unrest. Documentary. Directed by Jennifer Brea. USA. 2017. unrest.film.
Vastag, Brian. “I’m Disabled. Can NIH Spare a Few Dimes?” Washington Pos
t. July 20, 2015.
Verghese, Abraham. “A Doctor’s Touch.” TEDGlobal 2011. July 2011. ted.com/talks/abraham_verghese_a_doctor_s_touch/up-next?language=en.
Wadman, Meredith. “NIH to Double Funding for Chronic Fatigue Syndrome, but Patient Distrust Remains.” Science. November 10, 2016.
Warlow, Rebecca C. “Rare Footage of FDR at NIH.” Circulating Now: From the Historical Collections of the National Library of Medicine. September 10, 2014. circulatingnow.nlm.nih.gov/2014/09/10/rare-footage-of-fdr-at-nih.
Watson, James D. The Double Helix: A Personal Account of the Discovery of the Structure of DNA. London: Phoenix, 2011.
Weingarten, Paul. “Mystery Malaise.” Chicago Tribune. September 3, 2018.
Wessely, Simon. “Chronic Fatigue Syndrome: Summary of a Report of a Joint Committee of Colleges of Physicians, Psychiatrists and General Practitioners.” Journal of the Royal Colleges of Physicians of London. 1996.
White, Peter D., Michael C. Sharpe, Trudie Chalder, et al. “Protocol for the PACE Trial.’” BMC Neurology 7, no. 6 (March 2007).
White, Tracie. “The Puzzle Solver: A Researcher Changes Course to Help His Son.” Stanford Medicine. Spring 2016.
