Thinking in Pictures: My Life with Autism

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Thinking in Pictures: My Life with Autism Page 18

by Temple Grandin


  Some researchers don't believe autistics are capable of deception. They subscribe to Uta Frith's conception of autism, wherein people with the syndrome lack a “theory of mind.” According to Frith, many people with autism are not able to figure out what another person may be thinking. It is true that autistics with severe cognitive deficits are unable to look at situations from the vantage point of another person. But I have always used visualization and logic to solve problems and work out how people will react, and I have always understood deception.

  As a schoolchild, I played hide-and-seek. I learned how to trick the seeker into going the wrong way by stuffing my coat with leaves and putting it in a tree. I also had my entire boarding school believing that they had seen a flying saucer when I swung a cardboard saucer containing a flashlight in front of another girl's window. When she asked me about it, I told her she had probably seen a piece of insulation falling from the roof of our unfinished dormitory. I had rehearsed a whole bunch of explanations for the sighting, including the falling insulation, so she wouldn't connect my absence with the appearance of the saucer. My ploy was successful. Within two days, most of the students thought that a real flying saucer had been sighted. This deception was easy because I had gone over in my imagination all the stories I was going to tell.

  I've always enjoyed these kinds of tricks, because they require a vivid imagination, which I have in abundance. I'm motivated by the same challenge that makes hackers break into computers. I really identify with clever hackers. If I were fourteen years old today, I'm sure I'd be hacking away just for the thrill of seeing whether I could do it. I would never engage in harmful deceptions, though. In some ways I guess these tricks are a substitute for deeper human connection. They enable me to penetrate the world of other people without having to interact with them.

  Often people with autism are taken advantage of. Paul McDonnell wrote about the painful experience of being betrayed by somebody he thought was his friend, having his money stolen and his car damaged. He didn't recognize the social signals of trouble. It is easy for me to understand the concept of deception when it involves playing tricks with flying saucers or stuffing coats with leaves, but understanding the social cues that indicate an insincere person is much more difficult. In college I was betrayed by students who pretended to be my friends. I told them my innermost thoughts, and the next thing I knew they were laughing about them at a party.

  Over time, I have built up a tremendous library of memories of past experiences, TV, movies, and newspapers to spare me the social embarrassments caused by my autism, and I use these to guide the decision process in a totally logical way. I have learned from experience that certain behaviors make people mad. Earlier in my life, my logical decisions were often wrong because they were based on insufficient data. Today they are much better, because my memory contains more information. Using my visualization ability, I observe myself from a distance. I call this my little scientist in the corner, as if I'm a little bird watching my own behavior from up high. This idea has also been reported by other people with autism. Dr. Asperger noted that autistic children observe themselves constantly. They see themselves as an object of interest. Sean Barron, in his book There's a Boy in There, describes having conversations with himself to figure out social mistakes. He divides himself into two people and acts out the conversation.

  According to Antonio Damasio, people who suddenly lose emotions because of strokes often make disastrous financial and social decisions. These patients have completely normal thoughts, and they respond normally when asked about hypothetical social situations. But their performance plummets when they have to make rapid decisions without emotional cues. It must be like suddenly becoming autistic. I can handle situations where stroke patients may fail because I never relied on emotional cues in the first place. At age forty-seven, I have a vast databank, but it has taken me years to build up my library of experiences and learn how to behave in an appropriate manner. I did not know until very recently that most people rely heavily on emotional cues.

  After many years I have learned—by rote—how to act in different situations. I can speed-search my CD-ROM memory of videotapes and make a decision quite quickly. Doing this visually may be easier than doing it with verbal thinking. And, as I have said, I try to avoid situations where I can get into trouble. As a child, I found picking up social cues impossible. When my parents were thinking about getting divorced, my sister felt the tension, but I felt nothing, because the signs were subtle. My parents never had big fights in front of us. The signs of emotional friction were stressful to my sister, but I didn't even see them. Since my parents were not showing obvious, overt anger toward each other, I just did not comprehend.

  Social interaction is further complicated by the physiological problems of attention shifting. Since people with autism require much more time than others to shift their attention between auditory and visual stimuli, they find it more difficult to follow rapidly changing, complex social interaction. These problems may be a part of the reason that Jack, a man with autism, said, “If I relate to people too much, I become nervous and uncomfortable.” Learning social skills can be greatly helped with videotapes. I gradually learned to improve my public speaking by watching tapes and by becoming aware of easily quantifiable cues, such as rustling papers that indicate boredom. It is a slow process of continuous improvement. There are no sudden breakthroughs.

  Figuring out how to interact socially was much more difficult than solving an engineering problem. I found it relatively easy to program my visual memory with the knowledge of cattle dipping vats or corral designs. Recently I attended a lecture where a social scientist said that humans do not think like computers. That night at a dinner party I told this scientist and her friends that my thought patterns resemble computing and that I am able to explain my thought processes step by step. I was kind of shocked when she told me that she is unable to describe how her thoughts and emotions are joined. She said that when she thinks about something, the factual information and the emotions are combined into a seamless whole. I finally understood why so many people allow emotions to distort the facts. My mind can always separate the two. Even when I am very upset, I keep reviewing the facts over and over until I can come to a logical conclusion.

  Over the years, I have learned to be more tactful and diplomatic. I have learned never to go over the head of the person who hired me unless I have his or her permission. From past experiences I have learned to avoid situations in which I could be exploited and to stroke egos that may feel threatened. To master diplomacy, I read about business dealings and international negotiations in the Wall Street Journal and other publications. I then used them as models.

  I know that things are missing in my life, but I have an exciting career that occupies my every waking hour. Keeping myself busy keeps my mind off what I may be missing. Sometimes parents and professionals worry too much about the social life of an adult with autism. I make social contacts via my work. If a person develops her talents, she will have contacts with people who share her interests.

  During the past twenty years, for example, I've worked with Jim Uhl. He has constructed more than twenty of my projects, and he is one of my closest friends. Construction is his life. His business started in a tiny toolshed at the back of his home and has grown into a major company that does big jobs for the Arizona Department of Transportation and the mines. We just love to talk about contracting. Some of the best times of my life have been working on construction projects. I can relate to people who produce tangible results. Seeing my drawings turn into steel and concrete turns me on. Construction workers love to complain about stupid people in the front office, and I fit right in when they bitch about the “suits and ties” from the office who don't understand equipment or construction. Over the years I have worked with many crews and many different contractors. They all like to complain and tell construction war stories. I have no trouble being with them, and I become one of the guys. Another reason I
fit in with construction workers and technical people is that we are mostly visual thinkers.

  I am told by my nonautistic friends that relationships with other people are what most people live for, whereas I get very attached to my projects and to certain places. Last year Jim and I drove out to Scottsdale Feedyard, which is now closed and partially torn down. All that was left were a few posts, some tanks at the feed mill, and a deserted, wrecked office. The pens had been sold for scrap steel. It upset me very much and I didn't know if we should have come. The windows in the manager's office were broken, and the rain had warped the wood paneling. One of the few posts still standing was from the door in the fence where twenty years ago I had been blocked by the cowboy foreman.

  Watching the Swift plant slowly self-destruct and knowing it was going to close was very upsetting for me. I guess my relationships with Tom Rohrer and Norb Goscowitz and the other people there were the closest I've had. The Swift plant was the place where I had had some of my deepest thoughts about the meaning of life. Memories of its closing are much more devastating than any other memory. I still can't write about it without crying.

  My sense of identity was tied up with that plant, just as the things I had in my high school room were my identity. Then, when I went away for the summer, I did not want to pack any of my wall decorations away because I felt I would somehow lose myself. I had a special attic room in the dormitory where I went to think and meditate. Going to the special room, known as the Crow's Nest, was essential to my sense of well-being. When the construction of the dorm was finished, I no longer had free access to it; a locked door prohibited me from entering. I was so upset that the headmaster gave me a key.

  I also remember becoming upset when my Aunt Breechan died, but I was even more distraught when I found out that her ranch was for sale. The idea of the loss of the place made me grief-stricken. Hans Asperger also observed a strong attachment to places in autistics, noting that autistic children take longer to get over homesickness than normal children. There is an emotional bonding to the routines and objects at home. Maybe this is because of the lack of strong emotional attachments to people. I think Mr. Spock would understand.

  Update: Learning Social Skills

  Over the last ten years I have gained additional insights into how people relate to each other. I learned that I am what I do instead of what I feel. In my life I have replaced emotional complexity with intellectual complexity. People on the spectrum who are happy have friends with their same interests. Computer programmers are happy when they are with other programmers and they can talk about programming. I talked to one lady on the spectrum who met her husband at a science fiction book club. She writes technical manuals and he works in the computer industry. They love fine food and their idea of a wonderful romantic evening is to go to a really nice restaurant and spend time talking about computer data storage systems. Normal people have a hard time understanding why this special interest is so absorbing.

  Develop Shared Interests

  Social interaction revolves around shared interests. When I was in high school being teased by the other kids, I was miserable. The only place I was not teased was during horseback riding and model rocket club. The students who were interested in these special interests were not the kids who did the teasing. These activities were a shared interest for us.

  I strongly recommend hobbies and careers where common interests can be shared. Mentors who can nurture talent can help students become successful. Students on the spectrum should be encouraged to participate in activities such as robotics club, choir, poetry group, scouting, or chess club. My '50s upbringing helped me because turn taking and sharing was drilled into me. Today some Asperger's students have difficulty working as a team to build a robot. Working with another person should be part of the activity. Little kids need to be taught turn taking because this will make it easier to work with another person when they get older. Too many activities today are solitary. Special interest groups such as Star Trek conventions or historical societies are great places to network and find other people with similar interests. The people on the spectrum who are depressed and unhappy often have no interests they can share with another person.

  There are some really smart Asperger's and high-functioning students who need to be removed from the social pressure cooker of high school. After all, socializing with teenagers is not an important life skill. I am a strong believer in mainstreaming elementary school students so they can socialize with normal children. Lower-functioning students often do fine in high school because it is obvious to the other students that they are handicapped and should not be teased. But for some high-functioning high school students, it might make sense for them to take classes online or at a community college.

  Learning Manners and Social Survival

  I think some of the high-functioning Asperger's people are having serious employment problems because today's society fails to teach social skills. A brilliant man with Asperger's was fired from a library job for making comments to fat patrons. Mother taught me that these kinds of comments are rude. Even though honesty is the best policy, my opinion about other people's appearance was usually not welcome. Through many specific examples, I developed a category of “rude honesty” when I needed to keep my mouth shut. All social skills were learned by being given many specific examples that I could put into categories such as “rude honesty,” “introduction routines with a new client,” “how to deal with coworker jealousy,” etc. As I gained more and more experience I placed each new social experience in the appropriate social file. Coworker jealousy was difficult to deal with. At one plant, a jealous engineer damaged some of my equipment. Today I have learned how to bring him into the project to make him feel a part of it. This will reduce jealousy. I have also learned to compliment the jealous person when they do good work. Today I just accept the fact that jealousy is a lousy human trait. To get a project done it has to be defused.

  Social Skills Versus Social Relatedness

  Learning social skills is like learning how to act in a play. Social skills can be taught but social emotional relatedness cannot be taught. Social skills and emotional relatedness are two different things. Often parents ask me, “Will my child have a true emotional relationship with me?” It is sometimes difficult for parents to accept that the brain of their child is wired differently. A social emotional relationship that is purely emotional may be of little interest to the child. Autism varies widely, and some individuals will be more emotionally related than others.

  Modulating emotions is difficult for me. One time on a plane I laughed so hard at a movie that many people started staring at me. When I cry at a sad movie, I cry more than most people. My emotion is either turned on or all turned off. I have the four simple emotions of happy, sad, fearful, or angry. I never have mixtures of these emotions, but I can rapidly switch emotions.

  After I was kicked out of a large girls' school for throwing a book at a girl who teased me, I learned to change anger to crying. I was unable to change the intensity of the emotion but I could switch to a different emotion. At my boarding school, horseback riding was taken away after I got into several fist fights due to teasing. Since I wanted to ride the horses, I immediately switched to crying. Switching to crying enabled me to not lose a job due to either hitting or throwing things. At the Swift Plant, I often retreated to the cattle yards to cry. Today any kind of violent behavior would not be tolerated in the workplace.

  Subtle Emotional Cues

  I was in my early '50s when I first learned about small eye signals. I did not understand why eye contact with so important. There was a whole secret world of eye movements that were unknown to me until I read Simon Baron-Cohen's book Mind Blindness. Tone of voice was the only subtle signal I picked up. Obviously I recognized strong emotion in other people when they expressed anger by yelling, sadness by crying, or happiness by laughing.

  Mother has written about the difficulties with her marriage in her book A Thorn in My Pocket
. When I was a child, I did not pick up on the emotional turmoil between my mother and father. I failed to recognize the signs of conflict because they were subtle. They seldom yelled at each other and they never hit each other or threw things.

  What Does Research Show?

  Hundreds of scientific papers have been written on abnormalities in face perception in autism. The bottom line is that in autistic people the amygdala (emotion center) is abnormal and people with autism use different brain circuits when they recognize faces. I still have embarrassing moments when I do not recognize the face of a person I met five minutes ago. I am able to recognize people I have been around for a long time. If a face has a really unique feature like a giant nose, I can remember that. The number of studies on face recognition and eye signals greatly outnumber papers on how people with autism think or perceive sensory input. Normal people are more interested in studying emotions rather than studying sensory problems or how savant skills work. I wish the scientists would spend more time on sensory problems. Severe problems with sensory oversensitivity wrecks the lives of many people on the spectrum. The most miserable individuals are the ones with such severe sensory problems that they cannot tolerate a restaurant or office. Socializing is impossible if your ears hurt from normal noise in movie theaters, sporting events, or busy streets.

 

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