by Tim Parks
‘The doctors should have warned us. Charles was saying we should take them to court.’
‘I can’t quite see what that would solve.’
‘We might get some money.’
It is her turn to let a non sequitur pass. Fair enough.
ITV are showing a couple of hippos in the incongruous process of copulating. A regular evening’s viewing. I try:
‘He also said it might be better if she died.’
‘That kind of thing,’ she frowns at her pattern, ‘makes me very angry. You start with remarks like that and you finish up with Hitler and death camps. The little girl deserves to live as much as anybody else.’
It’s curious. I am simultaneously thinking that Charles is right, but that Mother is also right. Yet surely they can’t both be? Does the key lie in that word, ‘deserves’? And why is everybody else so sure of themselves, so well defined? While I flounder. The press have been going through a phase of admiring people who have the courage to help their old sick relatives over the great divide. Selection of pills. The right mix. Contact the Euthanasia Society.
Upset by this kind of talk, Mother goes to the kitchen and five minutes later brings me some tea and fruitcake. Her light, flowery dress is hung with careful looseness about her bulk, her shoes are flat and sensible. One knee is visibly swollen.
Snapping off the TV, I find myself saying: ‘How do you feel about your life, Mum?’
‘How do you mean, love?’ With a knitting needle she is scratching at the instep of a foot where veins bulge fiercely.
‘You grew up looking after Grandad and Mavis. Dad gets killed after you’ve been married just a few years. Then you spend the rest of your life slaving for Peggy and me and Mavis and Grandad and none of us were ever particularly grateful.’
‘What a grim way to look at it,’ she laughs. She seems not in the least perturbed by this, as she clearly was by the notion of mercy killing. ‘No, I’ve had a very rich life. God has been good to me. He gave me a small ministry. I’ve been able to pray and have fellowship with all kinds of people and there has always been just enough of this world’s goods. If you knew the number of times people have slipped things through the letterbox without leaving their names. It’s been a very fulfilling life.’
Getting excited, I say: ‘Yes, but Peggy and I didn’t exactly turn out how you wanted, did we?’
‘Oh, I don’t know. Peggy has this nice boy Barry. You’re happily married. I’m a grandmother twice over. What more could I want?’
Of course we both know very well what more. A great deal more. And yet I realise that this obstinately optimistic attitude is what I want to hear this evening. I want to hear my life described like this. And with tears suddenly in my eyes I find myself saying: ‘You know, if it hadn’t been for this awful business with Hilary, I would have loved to have had another child, more than one. What’s one earning money for after all?’
Have I ever articulated this view before? Even with myself. It’s perfectly obvious what one is earning money for: there’s so much still to buy.
Her knitting needles click along the edge of a silence now welling with unexplained emotion; evenly and determinedly: clickety click, click and click, clickety click, click and click. Then she stops. She looks up from a face that age has rather bloated. She says very calmly: ‘If you must know, dear, the one thing I regret in my life is the words they made me speak before they killed your father. I often wonder if they aren’t somehow to blame.’
We stare at each other, in some amazement that this has come out. As if a ghost (my father’s?) had crossed the room.
‘You what? To blame for what?’
She sighs over the crumpled knitting in her lap, not tearful as sometimes in the past, but with a weary ravaged softness about her roughly-shaped features under their helmet of grey hair.
‘For Hilary?’ I put incredulity into my voice.
Unable to speak, she nods.
I jump up. For reasons I don’t understand myself I’m quite ruthless. ‘Don’t be so bloody ridiculous, Mum!’ One thing I am not going to do is be lured into her metaphysical scheme of things. ‘You should see a psychiatrist. You know that? It’s mad to think that kind of thing. Mad.’ ‘Dear George,’ she’s muttering. ‘Dear George, I feel you’re so near, yet so far.’ ‘No,’ I say, ‘the only thing you did wrong,’ and I spit the words out, ‘if you must know, was not getting Mavis thoroughly checked out. Okay? That’s all there is to it.’ And I’m stamping over to the drinks cabinet with at least a quadruple whisky in mind, when the phone rings.
‘I’m bringing her home,’ Shirley says.
I Will Hope
‘I’m bringing her home.’
‘What? She’s better?’
Shirley is urgent: ‘She’s dying. I think they’re trying to let her die here.’
I tell her not to be ridiculous.
‘We’ll need some oxygen. Apparently you can hire it. Check out the yellow pages.’
‘But Shirley.’
‘Do it. Now. I’ll be back in an hour or so. I’ll take a cab. I’ve already signed her out.’
‘Let me come and get you in the car.’
‘No. I’ve got to get out of here now. Please, George, get the oxygen.’
She hangs up.
Mother is blowing her nose, sorting out her eyes.
‘Shirley’s bringing her home,’ I say, rising as one does to the drama of the occasion. In fact, while things are dramatic, life’s generally plain sailing. I grab the yellow pages.
And so begins the great epic: the tiny baby running a high temperature, suppositories, constant changing of sheets, of clothes, of nappies, of dressings on her strange and butchered legs, constant forcing of bottles between clamped gums, followed by vomiting, contortions. Her skin is clammy with fever. She cries a shrill nagging cry. She fights, though ever more weakly, whenever she is touched in any part of her body, eyes almost always screwed tight, hotly red in the now wan wax yellow of her face. In her fits she will have respiratory crises which require the oxygen mask. An ear infection generates a constant flow of pus.
Grabbing a snack with Shirley in the early hours, perhaps the second night, or the third, while Mother watches over the girl, I say: ‘We should have left her in hospital. They have all the equipment there.’
The house breathes silently about us. A hundred and sixty grand’s worth now and going up around £50 a day. The kitchen curtains haven’t been drawn and the yellow overhead light is hard and cold on the marble black tomb slabs of the windowpanes. Shirley’s expensive pans are piled high in the sink. I stab at crumbs.
‘Perhaps they were right.’
Shirley doesn’t answer at once. She moves purposefully in jeans and tee-shirt, scrambling eggs. She is living in a constant state of nervous tension. She doesn’t have the ten-hour escape to the office and other people that I have. Her face is drawn, gleaming with excitement. But she seems much more present, more decided, more one particular facet of her character than in the listless weeks following the birth. She is resolved, as if she had decided once and for all what to do, who to be. With a quick firm gesture she pushes unwashed hair from her face.
‘Nobody,’ she says, ‘has the least reason for believing that Hilary will never think and speak and talk and laugh and sing. Why should we let her die?’
She is reasonable, sensible rather than aggressive, which makes it difficult to argue.
I say carefully: ‘You didn’t seem so concerned about her when she was born. I mean, a bit offhand and mechanical. Why the big change?’
She shrugs. She asks does she have to explain herself? She doesn’t know. She might just as well ask why I have suddenly stopped hoping, since I was so hopeful and busy seeing specialists before. Arranging the operation. Wasn’t I? And now I want her dead. That isn’t fair, I say. We listen to the faint ticking of a wall clock. Then she says: ‘I just want to see her smile again, you know. I rather fell in love with her when she smiled that day.’
I say: ‘Think of the pain she’s in. Going on and on and on. Day after day. That ear problem she has. Her legs. Life is nothing but pain for her. It’s unbearable even to think of.’
‘The thing about pain,’ she says, ‘is that when it’s over, it’s over. But not being a woman you wouldn’t know anything about that.’
‘Let’s not argue, Shirl.’
She smiles, stands up, leans over the table and kisses me. ‘You’ve been wonderful, all the staying up you’ve done. I would never have expected it of you.’
‘Oh thanks a lot.’
‘Your mother too. Fantastic. Mine hasn’t even come to visit.’
‘Mum’s in her element,’ I tell her. ‘She probably wishes it was twins,’ and we both laugh.
Day after day then, nursing this sick child in a fetid, claustrophobic, overheated, over-emotive atmosphere. Two weeks, three. All taking our turns, shift after shift. Even the Filipino girl, Lilly, who will burst into tears occasionally and say how helpful it has been to find people worse off than herself, people she can help, how grateful she is. Peggy comes often. And Charles amazingly, an hour or two here and there, mucking in. People never cease to surprise you. If he does care for us in some way, then he certainly fooled me. I wonder will he use the oxygen if and when the child has a crisis in his sole presence. The question floats across my mind as an intriguing curiosity. The little girl’s life hangs by the most snappable of threads. For myself, in the drama of our trance-like weary nights, I have decided I must be good as the rest, I must do everything possible to see the little girl through. I’m determined still to believe, or at least not one hundred per cent exclude, that she does have a chance. And while that is on the cards, I will, I will hope.
What a relief though when I go to work. Or to Susan’s. Four, five times now. She always serves something of a feast after we’ve made love – eggs and bacon and beer and ice-cream. Traditional, solid fare. It’s almost better than the sex. Coming home on the tube, I tear an article about euthanasia out of the Standard and slip it between the pages of a scrapbook I keep in my briefcase.
The Worst Betrayal of All
It’s a few days after Hilary comes through her fever, that Shirley breaks down. The little girl’s improvement is sudden and dramatic. The temperature falls, her breathing becomes even, and in the space of a few hours a bloom returns to her cheeks. We are euphoric. We open bottles of Oddbin’s Verduzzo, we talk about the future, we jubilantly call the hospital to fix an appointment for the next check-up. Except that with this apparent return to health, we notice that the child isn’t looking about her in the same way she did at two months, before the op. She seems unable to follow a finger, to see the teat of a bottle.
At the check-up, which a surprised consultant arranges almost at once, a paediatric optician is called and immediately confirms that Hilary is indeed not seeing. The eyes, he says, are perfectly okay in themselves, but not responding or focusing. Something in the brain. The consultant hopes, clearing his throat, fussing with a pen, that this will be a temporary ‘symptom’ due to post-operative trauma. ‘You should feel very proud of yourselves,’ he goes on quickly, ‘I honestly didn’t think the girl would survive.’
‘Just that now she seems a great deal worse than before the operation. And her legs won’t bend.’
This middle-aged man smiles. He is long-jawed, schoolmasterly. ‘Actually, that remains to be seen.’ He focuses deep-set eyes on me. ‘I’m sorry, but this was not by any stretch of the imagination routine surgery, hence there were risks which we did warn you of. Certainly we don’t take these decisions lightly. However, and be that as it may, we shall have to wait a good, what, at least six months more to know the real results of the operation one way or another.’ He stops. ‘Nor do I see any need to be too pessimistic. The child has survived after all, which shows remarkable resilience.’
Shirley says: ‘She doesn’t seem to be able to hold her head up straight, doctor. I mean, she should be able to do that at four months, shouldn’t she?’
I haven’t actually registered this myself before, but realise now that this is what makes the girl so odd. Even when you hold her up, her head will loll slackly to one side. And I have one of my sudden piercing revelations, visions, of what our life will be like from now on with this handicapped child. I see her at five years old, ten, her head lolling.
Shirley is nodding gravely as the consultant describes the special kind of chair we will have to buy in about six months’ time to keep the spine and neck straight. Some kind of allowance, he is saying, is available to cover at least part of the cost.
Which is? Shirley is being very practical.
He doesn’t know. About £400 perhaps.
We stand up to leave. Then no sooner have we got in the car than Shirley flips. She straps Hilary into her seat and bursts into tears. She howls: ‘All those nights, all those nights of pain, and now she can’t even see!’
I drive brilliantly fast. I’m getting to know the lights and lanes round behind the hospital. That splendid feeling of challenging the great city machine: filters, left-only lanes, bus lanes, bollards, no right turns, sequence-timed lights, brake and accelerate, brake and accelerate. I stay silent a long while.
‘I can’t stand it, I can’t, I won’t stand it.’ She doesn’t even fiddle with handkerchiefs, just weeps, shoulders shuddering.
Finally, caught on a long red, I say: ‘Shirley, Shirley!’
‘I wish I was dead,’ she shrieks.
I drum my fingers on the wheel: ‘We should have been angrier. We should have told him we’d sue.’
‘God, do I wish I was dead!’
I storm up the Caledonian Road, jerking from pedal to pedal. The motley buildings race toward us, the wheeling sky, the low neon, tall blocks of flats, the afternoon sun occasionally spangling on blank glass, the rubbish outside cheap restaurants, the usual motley on the pavements.
Our child is blind.
Shirley is moaning now. I can think of no other word for it, a low animal cry, her face in her hands.
Overtaking on the inside lane, squeezing back into the flow before a parked car, it occurs to me that driving is not unlike a computer game. Some program that would project your score onto a corner of the windscreen perhaps?
I say maybe it really is only post-operative trauma. How can we know? In any event we must find some other consultant to contact who will tell us more. ‘These guys never tell us anything.’ Maybe we can find out if there’s some big specialist in America or Switzerland or something. ‘You can bet they’ll be light years ahead of the NHS for this kind of thing.’
‘I wish we’d never met,’ she says.
‘Come on, Shirley.’
‘Sometimes I hate you for all this.’
I don’t object. I often feel the same.
We drive on with an urgency that scatters other traffic like confetti. She doesn’t comment on it as she usually does. One secretly hopes for an apocalyptic accident of course. She leans over her seat and caresses the child’s thin hair. She is murmuring now. I stare at the road.
Has my mother been working on Shirley these weeks she’s been staying with us? I haven’t actually noticed anything, but I often think Mother manages to exude influence even without speaking. Her eyes, her posture, her tone. She will persuade you to see the world as she sees it. In any event, when we get back home, Shirley carries the baby with her into the house while I stick the car in the garage, taking my time over everything now, relaxing, calming down, turning keys and handles with the slow, almost voluptuous pleasure I have recently begun to find in doing all those little activities that keep you just outside the family sphere: taking a pee, a bath, a shave, carrying the rubbish out to the bin, changing a lightbulb in an empty bedroom. I move with meticulous painstaking slowness, the exact opposite of my dr
iving, though the escapist intent is no doubt the same. When finally I walk into the living room, Shirley is in my mother’s arms weeping.
She is making some kind of confession. It is all her fault she is saying in a low voice broken by sobs. All her fault. She’s been a terrible wife, she forced me to go and have other women, had an affair herself for ages and ages.
‘Shirley!’
Instinctively I try to wade in and stop this, but she clings tightly to my mother whose large face watches me over her shoulders.
‘It must be a punishment. It must. It’s too awful.’
‘Shirley, shut up!’
I start to shout, to try to pull them apart. Hilary wakes, as she always does, screaming. Through the bedlam, my mother says quietly: ‘George, why don’t you just go out for a while and let her get this off her chest.’
I hate, no really hate the attempt, inherent in that everyday expression (’get this off her chest’) and again in her tone of voice, her willed serenity and motherliness, to reduce the whole thing to a kind of understandable outburst which will soon be over.
‘No. It’s ridiculous. Shirley. Don’t be crazy! Let’s talk this over on our own.’
My mother, her face half in Shirley’s mussed hair, mouthes the word: ‘Please.’ Her old eyes, tremulous in their papery net of wrinkles, glow and plead, insisting I am her son. And I go. As much simply to be out of it as anything else. I go to Child’s Hill Park and smoke about a hundred cigarettes.
When I get back, they are in the baby’s room, kneeling and praying by Hilary’s cot. They don’t see me at first and I spy on them a moment from the landing. They are knelt in a clutter of toys and baby clothes on the carpet. The curtains must be drawn, because the light is pinkish grey filtered through red. My mother, on her swollen knee, has both raw hands hooked over the top rail of the cot, her face pressed against her knuckles, shoulders hunched, back bowed. Shirley on the other hand is kneeling straight up in perfect finishing school posture, girlish, virginal, the smart dove-grey wool dress she put on for the consultant falling prettily over her curved back, her slim calves; the fine ankles still in their white summer sandals. Then Mother launches into another prayer: Oh dear Lord who so often in the past . . .’
