by Geeta Anand
Henri Termeer has served as Genzyme’s chief executive for more than twenty years.
John’s favorite portrait of Aileen and Megan. He keeps it on his desk at work.
Aileen and Patrick ride on the Ferris wheel during their trip to Ocean City in summer 2002. Megan and John are in the cart below.
Megan’s first time ever on a beach was during the family’s trip to Ocean City in summer 2002.
Sharon Dozier and Megan wait for the school bus to take them to her first day of kindergarten in fall 2002.
The Christmas card from Dr. Debra-Lynn Day-Salvatore, which arrived at the Crowley house on December 24, 2002, with an accompanying note saying the children’s clinical trial had been approved to begin in the next two weeks.
John and Aileen check on Patrick after pressing the button to begin his infusion of Special Medicine on January 9, 2003.
Dr. Day-Salvatore asks Megan how she feels soon after beginning her first treatment with Special Medicine.
John and Aileen embrace at Patrick’s bedside.
Dr. Alfred Slonin with nurse Linda visit Megan in the hospital the day after she received her first treatment.
Megan, stronger after six months of treatment, heads off for a ride in her dad’s convertible. It’s the first time in years that he’s taken her out alone.
The Crowley family on vacation in Ocean City.
After several years of therapy, Megan Assink, who has Pompe disease, can smile, talk, and walk with braces. In this picture taken on Christmas Eve 2005, she dances for her parents, Greg and Deborah, who laugh in the background.
This picture, taken when John was still in the early phases of fund-raising for the Children’s Pompe Foundation, ran in Family Circle magazine with the line, “Too weak to walk, but not to hug.” Megan and Patrick continue to inspire their father on the journey to find a cure for Pompe.
THE BEGINNING
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Penguin Books is part of the Penguin Random House group of companies
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First published by Random House India in 2010
This collection published 2018
Copyright © Geeta Anand 2006
The moral right of the author has been asserted
Cover Desiner : Gavin Morris
ISBN: 978-8-184-00145-7
e-ISBN: 978-9-353-05149-5
This digital edition published in 2018.
This book is sold subject to the condition that it shall not, by way of trade or otherwise, be lent, resold, hired out, or otherwise circulated without the publisher’s prior consent in any form of binding or cover other than that in which it is published and without a similar condition including this condition being imposed on the subsequent purchaser.
