Patient Zero and the Making of the AIDS Epidemic

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Patient Zero and the Making of the AIDS Epidemic Page 30

by Richard A. McKay


  141. “Simon” requested that Shilts not use his name, thus I have given him a pseu do-

  nym. His interview notes in the Patient Zero folder are headed with the boxed phrase

  “raised in [name of province].”

  142. Roger Ross, “Media Finds Easy Target in Dead Man: Friends Angry That Gaetan

  Dugas Is Labelled Patient Zero,” Q Magazine [Vancouver], December 15, 1987, 5; copies

  of this short- running Canadian periodical are available at the British Columbia Gay and

  Lesbian Archives.

  143. “Paul Popham, Interview— April 17 ’86,” interview notes, p. 5, folder 25, box 34,

  Shilts Papers.

  144. Randy Shilts to Marcus Conant, 14 May 1986, folder 60, box 1, K- S Notebook—

  Chronological Files, Conant Papers.

  178

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  once more, explaining that he was ready to write up some sections and,

  in addition to other details, would like to know “anything about Gaetan

  Dugas.”145 It appears, somehow, that the writer was able to obtain some

  medical information about the fl ight attendant from the doctor’s of-

  fi ce, as two pages of information in Shilts’s records list the fl ight atten-

  dant’s social insurance number, insurance provider, former doctors, ill-

  ness and treatment history, and the date of one visit to Conant.146 More

  important, however, the next phase of the development of the “Patient

  Zero” story was under way: over the next few months, Shilts wrote up his

  book, and Michael Denneny prepared its release.

  “I Wait for a Pulitzer Prize”

  A few weeks after returning to San Francisco from Vancouver, Shilts

  wrote a weary yet upbeat entry in his journal, refl ecting on changes from

  his old self: “Then I wanted a job— Now I wait for a Pulitzer Prize. Then

  I wanted sex— now I still want a life- long relationship— A big change—

  It’s been 2 years w[ith]/out alcohol and, in 9 days, one year without Any

  drugs. No pot. No coke and that has helped [me] see how success is my

  drug too and how I’ve been trying to have an applauded today replace a

  childhood in which I was beaten and emotionally abused— .” The jour-

  nalist was feeling “a little under the weather,” a feeling which he attrib-

  uted to working too hard on his second book, so he kept the entry short,

  noting in conclusion that “somewhere, I hoped to have a hand in making

  a better world and (most lately) in saving some lives. Life gets so much

  more serious than we ever expect it to be and all our youthful scheming

  can look pretty petty in retrospect— I hope I do a better job of all this life

  business in my second 34 years. Randy”147

  The writing of his second book, Band, would drain Shilts emotion-

  ally and fi nancially. After getting a green light from Denneny, Shilts re-

  duced his work at the Chronicle to part- time in September 1985 to work

  on the book.148 He took to writing during the day and working the night

  145. Randy Shilts to Marcus Conant, 31 July 1986, p. 1, folder 14, box 33, Shilts Papers.

  146. “Gaton Dagus [ sic],” Shilts’s handwritten notes, folder 23, box 34, Shilts Papers.

  147. Shilts, “April 6, 1986 / SF,” “Green” journal, Alband Collection.

  148. Mark A. Perigard, “They Fiddled While Rome Burned— A San Francisco AIDS

  Reporter’s Wide- Ranging Critique,” Bay Windows [Boston], November 12– 18, 1987, 6.

  “Humanizing This Disease” 179

  shift at the newspaper before eventually taking a leave of absence from

  the Chronicle to concentrate on the book full time. In addition to the

  diffi culties of conducting interview after interview with dying PWAs,

  the expenses of research travel and telecommunication took their toll.

  He later stated that the publisher’s advance just covered the cost of his

  long- distance phone calls and that he needed an additional $4,000 “to

  pull him through a personal fi nancial crisis.”149 He borrowed the maxi-

  mum amount on his credit cards and went $30,000 into debt.150 An un-

  dated note in his papers for Band indicates that at one point Shilts “fi led

  bankruptcy” and was “on foodstamps.”151 He also borrowed money from

  three of his brothers, whom he thanked in Band’s acknowledgements.152

  As Denneny recalled, “Randy went totally broke writing the book. Bor-

  rowed from all his friends, from his family. Finally, he’s one of these peo-

  ple who has one of these great big glass jars that he’d throw his pennies

  and nickels into. He had to take that to the bank, to pay his rent.”153

  A letter written in late September 1986 from Shilts to his editor dem-

  onstrates the author’s determination to complete the book despite set-

  backs. Shilts was enclosing the fi rst half of the book, which would have

  included the Patient Zero segments, and nervously awaited feedback:

  “Of course, I’m neurotically sitting around until you call me up and

  tell me what you think, so read it. I don’t think you’ll be disappointed.”

  Shilts mentioned that he was due to return to work at the Chronicle on

  January 4, 1987. Shilts continued, “That is when I want this book com-

  pleted as well. It simply was impossible to even work part- time while I

  did this. Frankly, I was getting extremely stressed out toward the end of

  the summer, my dreams haunted with horrible nightmares about peo-

  ple trying to inject me with AIDS virus and the like.” He warned of im-

  pending dire fi nancial circumstances: “I left The Chron on the faith that

  somehow, somewhere, the money would come up to support me. I can

  take care of myself, probably, through October. In November, however,

  I must have money. I’m not posturing around this; I mean that I’ll need

  money to pay rent and that kind of thing. I’m praying we can get what-

  149. Steve Taravella, “‘A Story of Prejudice’: Author Chronicles Politics behind AIDS

  Policies,” Modern Healthcare, January 1, 1988, 76.

  150. “Heart of an Epidemic,” 14.

  151. Handwritten note, folder 6, box 42, Shilts Papers.

  152. “Heart of an Epidemic,” 14.

  153. Denneny, recording C1491/22, tape 1, side B.

  180

  chapter 3

  ever money deal we can worked out in October; we must get it worked

  out in October. I hate to have these kinds of worries dogging me when

  I’m working on such a massive project.”154

  The journalist also described the political context of his writing,

  which imbued his task with even greater urgency. “It’s possible I never

  will write something this important again. I can’t describe what it’s like

  to be in California with the debate over the LaRouche Initiative rag-

  ing.” A far- right political leader, Lyndon LaRouche, and his associates

  had assembled enough signatures to place a referendum on public health

  policy onto the California state ballot, with the vote to take place in No-

  vember 1986. Proposition 64 asserted that HIV could be spread through

  casual contact and insect bites, demanded mandatory testing for anyone

  suspected of being infected with the virus, and called for the quarantine

  of all those infected. “I assure you,” Shilts continued, “Proposition 64 is

  the start, not the end, of
such proposals. Behind it is an anger at AIDS. I

  think the anger is warranted. However, we are not the people to be mad

  at. I think this book sets the record straight. Hopefully it will also save

  our collective asses when the real numbers start to mount and the real

  anger, still nascent, begins to arise in full force.”155

  Shilts’s use of “we” implies his self- identifi cation with the gay com-

  munity, wrongfully facing the anger and blame for AIDS, fury which, he

  believed, should be directed toward the Reagan administration’s inac-

  tion. His word choice also prepared the ground for an act of scapegoat-

  ing, an expulsion of an undesirable whom he deemed unworthy of com-

  munity membership and on whose head the perceived collective sins of

  the group could be placed. The writer recycled long- held tropes about

  superfi cially attractive but deadly disease spreaders in his “othering” of

  Dugas; his acknowledgment of his own vulnerability to these external

  charms underscored their dangers. Speaking later of the fl ight attendant,

  a contemporary whose physical beauty he admired, Shilts admitted, “He

  was totally beautiful. I would have gone to bed with him in a minute. . . .

  154. Randy Shilts to Michael [Denneny], 25 September 1986, folder: Band Letters, Re-

  views 87– 88, Alband Collection; the fi rst instance of October is typed as “Octobere” in

  original, and these typed as “theses” in the fi nal sentence.

  155. Ibid. See also Christopher P. Toumey, “Conjuring Medical Science: The 1986 Ref-

  erendum on AIDS/HIV Policy in California,” Medical Anthropology Quarterly 11, no. 4

  (1997): 477– 97.

  “Humanizing This Disease” 181

  Maybe that’s why I got so obsessed with him and tried to fi nd out every-

  thing I could about him. Winsome, sandy hair, mustache, very thin, not

  overly tall, well- defi ned torso with light hair all over it— Gaetan was the

  kind of man you’d see dancing shirtless at a disco, and everybody would

  fall for him.”156 Shilts became convinced, however, that there was a dark

  side to this beauty. In an interview with his hometown newspaper, Shilts

  gave a clue to the framework within which he viewed Dugas, speaking of

  his belief “in moral absolutes. To me, what is morally wrong is not being

  kind to your fellow man and ignoring situations in which you can help

  out.”157 Dugas, from Shilts’s perspective, utterly failed in this respect.

  Shilts would later be unrepentant about his depiction of Dugas, vari-

  ously comparing the fl ight attendant to a sociopath, a psychopath, and,

  in an interview published by the St. Paul Pioneer Press Dispatch, a se-

  rial killer. “He’s no more representative of people with AIDS than Rich-

  ard Speck is representative of the typical male heterosexual. There are

  others who were infected and who behaved responsibly and heroically.”158

  Similarly, for a British paper while on his UK book tour, he said, “As

  a gay person myself I wasn’t thrilled about Gaetan’s behavior. I don’t

  see him as any more typical of a gay man than Jack the Ripper was of

  the heterosexual— but it did happen.”159 When asked by an interviewer

  from the Advocate, his old employer, to explain how Dugas could have

  done what Shilts wrote he did, the journalist deployed some armchair

  psychology: “I think the key line in the book that gives away every-

  thing about Gaetan is when he’s watching Jerry Falwell on TV and he

  says maybe Falwell is right, maybe we are being damned. I think that

  Gaetan was someone who had never accepted himself as a human be-

  ing, hated the part of himself that was gay, hated other gay people, exter-

  nalized that self- hatred, and became what in effect was a psychopathic

  killer. Every city has its Gaetan Dugas.”160 Denneny recalled that he and

  Shilts had long discussions about boyfriends and ex- lovers who contin-

  156. Bluestein, “Cries and Whispers,” 65. Shilts seems to be completely unaware of

  the assumptions of race and class informing his construction of what “everybody” desired.

  157. Bercaw, “Shilts Gets Grip,” A8.

  158. Jacqui Banaszynski, “Reporter Calls Accounting of AIDS a ‘Mission,’” St. Paul

  Pioneer Press Dispatch, November 10, 1987, 4A. Richard Speck raped and murdered eight

  nursing students in Chicago in 1966.

  159. Young, “Patient Zero.”

  160. Bluestein, “Cries and Whispers,” 65.

  182

  chapter 3

  ued to go to the baths after they were sick and apparently did not use

  protection. Though the two were not in a position to determine whether

  these were attempts to spread the AIDS-

  causing agent deliberately

  or a form of carelessness, or even how often such instances occurred,

  they agreed that it was important to document such actions, which they

  viewed as morally indefensible. Although Denneny would later concede

  that Shilts’s characterization of Dugas as an individual was perhaps mis-

  taken, he would remain adamant that the behavior that Dugas’s charac-

  ter stands in for did happen.161

  As some critics were horrifi ed by the presentation of Dugas in the

  book, and particularly the scene from November 1982 in the San Fran-

  cisco Club Baths, they might have been outraged by an earlier draft.162

  This earlier version is extraordinary for the extent to which it enlarges

  Shilts’s view of Dugas as a sociopath. Almost identically to the fi nal man-

  uscript, Shilts described how Dugas chose a cubicle to enter in the bath-

  house “and waited for the ritual nod that indicated he would be welcome.

  Without speaking a word, the assignation was set and Dugas pushed the

  door shut.” At this point, the fi nal manuscript stops, a result of an edito-

  rial decision to strike through the following lines: “Gaetan could barely

  restrain a giggle as the thought once again arched across his mind and a

  certain glint crossed his mischievous eyes. Maybe he would play his little

  joke with this one.”163 In Shilts’s version of 1982, there was no room for

  competing etiologies of “gay cancer,” or for moral ambiguity.

  Dugas’s friends in Vancouver who were interviewed by Shilts would

  have been interested in other information that did not make it into the

  book. Bob Tivey, for example, had described a lighthearted day when

  Dugas had called him up for a picnic. They drove on Dugas’s motorcy-

  cle to North Vancouver, where they spent the afternoon walking around,

  eating, and drinking from little airplane bottles of champagne. The iso-

  lation within the gay community that Dugas was facing was apparent to

  161. Denneny, recording C1491/22, tape 1, side B; tape 2, side A; tape 3, side A. Addi-

  tional recollections provided in e- mail to author, May 24, 2013.

  162. Shilts, Band, 196– 98; Guy Babineau, “The Prettiest One: Gaetan Dugas and the

  ‘AIDS Mary’ Myth,” XTRA! West [Vancouver], November 29, 2001, 13– 15; James Miller,

  “AIDS in the Novel: Getting It Straight,” in Fluid Exchanges: Artists and Critics in the

  AIDS Crisis, ed. James Miller (Toronto: University of Toronto Press, 1992), 258.

  163. Draft of Band, p. 456, folder: Draft (511p), n.d., p. 317�
�� 511 (3 of 3), box 37, Shilts

  Papers.

  “Humanizing This Disease” 183

  Tivey when, at the end of the day, Dugas dropped him off and gave him a

  kiss, saying, “T[han]k you for g[ivin]g me a normal day.”164 In writing the

  book, Shilts skipped over this anecdote in favor of one that reinforces

  the image of Dugas angrily resisting medical cautions to refrain from sex

  completely.165

  Kevin Brown also shared a story with Shilts that did not get included

  in the fi nal manuscript of Band. Brown and Dugas had gone on a date

  to the Conservatory, a beautiful restaurant in Vancouver’s Stanley Park.

  When Brown admits he is interested in Dugas sexually, Gaétan hesitates

  before answering, “We can’t. It won’t work out. I can’t say any more.”166

  This page- long section, completely written up and included in an early

  draft, was cut. It is possible that this was done to tighten the pace of a

  long book, though its excision also removed any ambiguity from Dugas’s

  motivations and strengthened the image of the fl ight attendant as a de-

  liberate disease spreader. Shilts omits the recollections of “Frank” that

  Dugas was “always in love [and] needed [an] emotional bond, even if for

  a few days,” and that he was “considerate, generous, would share any-

  thing.” Also left out was the more humanizing point— to which Shilts

  could almost certainly relate— that Dugas “was once chubby— got weight

  down— hated old pictures.”167

  Shilts also left out humorous anecdotes about Dugas, diminishing

  the warm sense of humor remembered by the fl ight attendant’s friends,

  who in their interviews with Shilts described Dugas as a clown. The

  fl ight attendant would twist his English words around in a humorous

  way that would make his friends laugh. Dugas would also make light of

  his condition: “If you fi nd me dead, just bury me in the backyard.” He

  “ always had p[eo]ple laughing,” Shilts’s notes indicate, “he could charm

  a rattlesnake.”168 Dugas’s charm would enter the book, but generally in

  a detached, coldhearted way. Shilts depicted the fl ight attendant mak-

  ing use of it to single- mindedly pursue his own aims. To a certain extent,

  some observers might say that the author deployed the information he

 

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