Patient Zero and the Making of the AIDS Epidemic

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by Richard A. McKay


  whose name had recently been leaked to the media and who faced a boy-

  cott from parents of students at the school where he taught. Indeed, the

  story about the boycott against Smith peaked in Canada at exactly the

  same time as the “Patient Zero” story broke.68 Smith later suggested,

  65. Ed Jackson, interview with author, Toronto, September 14, 2008, recording C1491/

  48, tape 1, side A, BLSA. In their recorded testimonies, two interviewees based in San

  Francisco reported single unprotected sexual encounters with Dugas between 1980 and

  1982. At the time of interview in July 2007, one, Josh Lancaster (pseud.), was HIV- positive

  and angrily convinced that he had contracted his infection from the fl ight attendant and

  not his other San Francisco bathhouse encounters; interview with author, July 28, 2007, re-

  cording C1491/12, tape 1, side A, BLSA. The other man was HIV- negative and believed

  that his encounter with Dugas in Vancouver— after which he immediately began hearing

  stories of the fl ight attendant’s “gay cancer”— may have helped him by raising his aware-

  ness of the risks associated with AIDS at an early date; Ross Murray, interview with au-

  thor, July 29, 2007, recording C1491/15, tape 1, side A, BLSA.

  66. Bill Lewis, “Case May Set Precedent, Decision Expected Feb 14,” Body Politic,

  February 1979, 7– 9.

  67. Media contact record sheets, folder: Media Contacts: October 1987, box 91– 143/11,

  ACT Records.

  68. See, for example, Canadian Press, “AIDS- Fearing Parents Plot Boycott,” Vancou-

  ver Sun, October 9, 1987, A6.

  210

  chapter 4

  with good humor, that he had not been aware of the story about the fl ight

  attendant at that time: “If [ chuckling] there was an AIDS story carried

  in Halifax, it was me, because two or three a times a week at least, some

  parent would be saying something idiotic, or the school board would be

  making an announcement, so they were getting their quota of AIDS sto-

  ries just locally.”69

  In contrast to the hospital in Quebec City, which readily confi rmed to

  Le Soleil that Dugas had once sought treatment there, the US Centers

  for Disease Control held a silence over Dugas’s identity. Harold Jaffe,

  the former KS/OI Task Force member who spoke for the organization in

  an interview published in mid- October 1987, denied the idea that “Pa-

  tient Zero” referred to a single individual who brought AIDS to “North

  America or California or Canada.” It would be impossible to know this,

  he said, and besides, “For every individual we were aware of, there were

  probably 10 that we weren’t aware of.” He also refused to confi rm or

  deny whether Dugas was “Patient Zero,” saying that the CDC had never

  identifi ed this man.70 Given its long history of work in venereal disease

  control and its early history of gathering the names of individuals with

  AIDS, the CDC believed it was vital for its interests and credibility that

  a silence was kept on the identity of “Patient Zero.”71

  The Dugas family crafted another silence. Apart from their few spo-

  ken words to Le Soleil, family members refused to comment publicly.72

  Before the New York Post broke the story, CBS Television recruited a lo-

  cal Canadian reporter to gain the family’s cooperation for a 60 Minutes

  69. Eric Smith, interview with author, Halifax, August 1, 2008, recording C1491/36,

  tape 1, side B, BLSA.

  70. “‘First AIDS Patient’ Story Dismissed,” A3.

  71. This silence continues largely to the present day. In his 2008 oral history interview,

  Bill Darrow referred to this man consistently as “Patient O.” When Harold Jaffe and the

  author began jointly drafting a collaborative article in 2013, the former requested that the

  fl ight attendant’s name be removed and replaced with “Patient 0,” preferring that the iden-

  tifi cation be held at arm’s length through a citation of And the Band Played On.

  72. This strategic silence, like that of the CDC, extended for decades. In October 2007

  a reporter from Le Soleil had contacted Dugas’s sister and sister- in- law to ask what they

  thought about reports announcing a recent scientifi c theory that HIV had arrived in the

  United States in 1969. They replied that it had brought the family some relief, but having

  had their name “blackened,” they preferred to let the subject die, wishing to speak of it no

  more since they were fed up with “all this s— ” (my translation); Ian Bussières, “Agent de

  bord exonéré d’avoir propagé le sida en Amérique: la famille de Gaétan Dugas soulagée

  mais amère,” Le Soleil [Quebec City], October 31, 2007, 17.

  Giving a Face to the Epidemic 211

  episode. She recalled that “I was a journalist with CBC TV in Montreal

  and a researcher from 60 Minutes contacted our newsroom looking for

  someone who’d translate between French and English on a ‘secret’ as-

  signment to Quebec City. I picked up the researcher at the Montreal air-

  port and she told me the chilling story on the drive to Quebec City. She’d

  made an appointment to speak to the Dugas family, to ask for access to

  family pictures and interviews.” The Canadian reporter was struck by her

  own attachment to and sympathy for the Dugas family members, and she

  found herself contemplating how to protect them from the media’s gaze:

  They were very decent people who’d adopted Gaetan Dugas and deeply loved

  him. There was a mass card with Gaetan’s photo on their refrigerator door.

  His sister, a dental hygienist, had nursed him and was concerned that, if this

  was known publicly, she’d lose her job. I was able to give the family some

  options to cooperating with 60 Minutes (in French) that the 60 Minutes re-

  searcher was unaware of. The parents were very concerned about control-

  ling the story in order to protect Gaetan’s reputation. . . . I found myself pro-

  foundly protective of them and would not give out their address to my French

  or English colleagues when the story broke in Canada. The Dugas family did

  not cooperate with 60 Minutes to the best of my knowledge. They did not be-

  lieve the researcher’s assurances that the story would not be sensationalized.

  Indeed it was, with Gaetan being called the “Typhoid Mary of AIDS” . . . I’m

  sure they were devastated. His mother told me he’d take her on trips and was

  very kind and loving to them. A good son.73

  Indeed, the 60 Minutes piece on “Patient Zero”— a long- awaited fi rst

  piece of investigative reporting from that program on the epidemic—

  was deeply exploitative. It was allegedly focused on the Reagan admin-

  istration’s lack of attention to AIDS— a strategic nonresponse to the ep-

  idemic which ACT UP had begun to protest with the adopted battle

  phrase “silence = death.”74 Yet the fi rst half of the segment, as the

  73. Marie Wadden, e- mail message to author, June 6, 2008. This e- mail was sent in

  response to a nationally broadcast interview about my research on CBC Radio’s Sounds

  Like Canada, June 4, 2008.

  74. Douglas Crimp, “AIDS: Cultural Analysis/Cultural Activism,” in Crimp, AIDS, 3–

  16. In early 1987, members of the silence = death Project, an activ
ist design collective,

  mounted visually striking posters across New York City that carried this phrase. The slo-

  gan appeared in white capital letters beneath a pink triangle, all set against a black back-

  ground. The collective’s members, who shortly thereafter participated in ACT UP’s inau-

  212

  chapter 4

  cultural scholar Leo Bersani noted, was an examination of “the mur-

  derously naughty sexual habits of Gaetan Dugas.” This choice of con-

  tent resulted in a report that was sensational from its beginning, Bersani

  maintained, “with the most repugnant image of homosexuality imagin-

  able: that of the irresponsible male tart who willfully spread[s] the vi-

  rus after he was diagnosed and warned of the dangers to others of his

  promiscuity.”75 While the program’s producers did not add any new in-

  formation to Shilts’s version of the story, they managed to acquire sev-

  eral photographs of the fl ight attendant, and thus they were able to put a

  face to the disease for their North American audience (see fi g. 4.2).

  Viewers were invited to gaze upon the shirtless torso of Dugas and

  ponder his motivation as the camera zoomed in slowly to a close- up

  (see fi g. 4.3). The program’s host, Harry Reasoner, matter- of- factly—

  and without a trace of irony— explained, “Patient Zero is the name that

  Dr. Dritz and the medical detectives used to describe this man, the air-

  line steward, to protect his identity. Randy Shilts reveals that he was a

  French- Canadian named Gaetan Dugas.” A jump cut to a tight shot of

  the fl ight attendant accentuated Reasoner’s designation: “Patient Zero—

  one of the fi rst cases of AIDS.” Finally, the last jump cut brought the au-

  dience face- to- face with an extreme close- up of Dugas’s eyes: “the fi rst

  person identifi ed as a major transmitter of the disease.”76 The program

  also reproduced the cluster diagram in a misleading animated cartoon it

  labeled “Cluster Study Patient Zero.” The animation began with a sin-

  gural activities, loaned their distinctive image to the new activist group for wide use in its

  protest work; see Douglas Crimp, “AIDS: Cultural Analysis/Cultural Activism,” in Crimp,

  AIDS, 3– 16; Christian Liclair, “Silence=Death- Project,” The Nomos of Images (blog),

  ISSN: 2366- 9926, December 30, 2015, http:// nomoi .hypotheses .org/ 198. Since the 1970s, a

  transnational network of European and North American gay rights activists had adopted

  the pink triangle— the emblem which male homosexuals were forced to wear in Nazi con-

  centration camps during the Second World War— as a symbol to challenge cultural silences

  around homosexuality and to promote gay pride; W. Jake Newsome, “Migrating Memo-

  ries: Transatlantic Commemoration of the Nazis’ Homosexual Victims in West Germany

  and the United States” (paper presented at the annual meeting of the American Historical

  Association, Atlanta, January 10, 2016).

  75. Leo Bersani, “Is the Rectum a Grave?” in Crimp, AIDS, 202.

  76. Lowell Bergman, “Patient Zero,” 60 Minutes, CBS, airdate November 15, 1987, on-

  line video, 14:10, https:// www .youtube .com/ watch ?v = Sc7bYnH2Zpo. For a critical discus-

  sion of the media’s use of images of PWAs to “reveal” what one British tabloid called “the

  disturbing truth about AIDS sickness,” see Martha Gever, “Pictures of Sickness: Stuart

  Marshall’s Bright Eyes,” in Crimp, AIDS, 108– 26, quotation at 115.

  Giving a Face to the Epidemic 213

  Figure 4.2 Host Harry Reasoner introducing “Patient Zero” segment on 60 Minutes,

  CBS, broadcast November 15, 1987. With the name “Patient Zero” authoritatively stamped

  across Dugas’s forehead, there is nothing in this message to indicate the contingent and

  unplanned route by which the designation came into being. This episode of 60 Minutes

  was the fi fth most watched television show nationwide that week (topped only by four sit-

  coms), according to the Nielsen Ratings service. The program reached twenty- one million

  households with television sets (Associated Press, “It’s Waterloo Again for ‘Napoleon,’”

  Orlando Sentinel, November 19, 1987, E8).

  gle circle containing the numeral 0 fi lling an otherwise blank and grid-

  lined dark blue canvas. As the camera pulled back, the other cluster case

  connections, represented by spokes and unnumbered colored circles,

  popped outward from this central point, until the full cluster diagram

  fi lled the frame, rotated slightly counterclockwise so that the length of

  the network was now arrayed horizontally across the screen. This ani-

  mation suggested an inexorable growth outward from “Patient 0,” the

  only identifi ed case. It represented a subtle yet powerful misinterpreta-

  tion of the connections traced by Bill Darrow, one which further empha-

  sized and naturalized Dugas’s supposedly central role.

  John Greyson, a Toronto artist and fi lmmaker who was involved with

  AIDS Action Now! (an Ontario- based activist group modeled on ACT

  UP), was struck by the intensity of the media’s gaze on the fl ight atten-

  A

  B

  Figure 4.3 Gaétan Dugas,

  “the fi rst person identi-

  C

  fi ed as a major transmitter of

  the disease,” as described in

  voiceover by Harry Reasoner

  on CBS program 60 Minutes,

  broadcast November 15, 1987 .

  The sequence of images began

  with ( A) a torso shot, zoom-

  ing in slowly to ( B) a close- up,

  jumping to ( C) a tight shot,

  and fi nally jumping to ( D) an

  extreme close- up. The pro-

  gram’s editors employed jump

  cuts to bring millions of view-

  ers up close with the man Rea-

  soner described as “a central

  D

  victim and victimizer.”

  Giving a Face to the Epidemic 215

  dant and the family’s studied silence. Before the Canadian Film Cen-

  tre accepted him as a resident in the organization’s three- year directors’

  program, he incorporated the media’s handling of the “Patient Zero”

  story into two art pieces he produced in 1989. In one, initially published

  as “Requiem for Gaetan” in 1988, a viewer fl ips across several fi ctitious

  television channels searching for a documentary on the life of Dugas.

  On the last channel, the viewer catches the end of the documentary,

  and here Greyson conceptualized the reaction of the fl ight attendant’s

  mother as one of defi ance, resisting the commodifi cation of her image as

  the mother of “Patient Zero” and shifting her strategy of silence to one

  of invisibility:

  click

  Channel 17: . . . close- up of Gaetan Dugas, the black and white photo from

  the National Enquirer. A disembodied voice, a woman, bitter and clipped,

  Québécois.

  “Look, I’ve done a lot of research on my own. I’ve talked with maybe two

  dozen specialists, here, in the United States, in Europe. They all say there’s

  no such thing as a Patient Zero, it doesn’t make sense medically, the epide-

  miology is all wrong. The cluster groups around the continent, and the num-

  bers,
indicate no one person could have been responsible. Plus all the new

  stuff about co- factors. And I’ve told a thousand reporters— but do you think

  anyone has printed it? Not a chance. They just want a photo of Patient Zero’s

  mother. So forget it.”77

  Elsewhere in the piece, Greyson employed the fi ctional Mallory Kea-

  ton — a teenaged character from Family Ties, a popular contemporary

  American television series starring the Canadian actor Michael J. Fox

  as Alex Keaton with Justine Bateman as his sister Mallory— to ventril-

  oquize his critique of Shilts. “I want to explore the book’s double mes-

  sages,” Mallory— a scatterbrained character cast here as a wise fool—

  tells Alex, “the simultaneous critiquing and validation of the mainstream

  77. John Greyson, “Liberace’s Music Helped Cure Me,” in Urinal and Other Stories

  (Toronto: Art Metropole and the Power Plant, 1993), 268– 69. Earlier versions of this work,

  which Greyson initially wrote to highlight a strong culture of lesbian and gay video produc-

  tion in Canada, were published in British and Canadian gay periodicals: see Square Peg 19

  (1988): 28– 29; Rites, September 1988, 12, 18; and the Vancouver- based Video Guide 10, no. 3– 4 (November 1989): 8– 9, http:// www .vivomediaarts .com/ wp - content/ uploads/ 2015/

  06/ VGUIDESno046small .pdf, accessed February 24, 2017.

  216

  chapter 4

  medical establishment; the appropriation of gay liberation discourse to

  buttress deeply conservative positions; and fi nally, Shilts’ dangerously

  reactionary views concerning sexuality and its regulation.” Mallory con-

  tinues, “Right now I’m working on how he constructs the Gaetan Dugas

  story, turning him into the dangerous, exotic Patient Zero, a latter- day

  Typhoid Mary.” There is a dark irony at play when Greyson has Alex,

  backed up by the show’s recorded laugh track, mock his sister and ask

  her if she is “on drugs.” Greyson would continue pondering the main-

  stream success of the “Patient Zero” story. Needing to develop a feature

  fi lm proposal for his fellowship at the Canadian Film Centre, Greyson’s

  critique would evolve into an unusual fi lm project, Zero Patience, which

  will be examined in greater detail in chapter 5.

  Michael Denneny was concerned that if only fi ve thousand copies of

 

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