Patient Zero and the Making of the AIDS Epidemic

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Patient Zero and the Making of the AIDS Epidemic Page 41

by Richard A. McKay


  7. John Greyson, interview with author, Toronto, September 2, 2008, recording C1491/

  41, tape 1, side A, BLSA.

  8. Michael J. Trebilcock and Lisa Austin, “The Limits of the Full Court Press: Of

  Blood and Mergers,” University of Toronto Law Journal 48, no. 1 (Winter 1998): 29– 30.

  9. Brier, Infectious Ideas, 4.

  10. Jackson, recording C1491/48, tape 1, side B; Tim McCaskell, “A Brief History of

  AIDS activism in Canada,” Socialist Worker, November 24, 2012, http:// www .socialist .ca/

  node/ 1453.

  250

  chapter 5

  the offi ces of the collective that produced the Body Politic newspaper

  in 1977 and later as part of a massive series of arrests in the city’s bath-

  houses in early 1981— formed a historic backdrop that galvanized large

  sections of the city’s gay population, the largest in the country, to re-

  sist authorities seen as overstepping their jurisdiction. Susan Knabe and

  Wendy Gay Pearson, the authors of a book- length critical analysis which

  situates Zero Patience and Greyson’s activism within a wider political

  context, suggest that the 1981 police raids on the bathhouses in that city

  helped focus the community’s activism around explicit sexuality and the

  right to share sexual spaces. Thus, in their words, “AIDS emerged into

  a politicized community that had a particular ideological investment in

  the defence of sexual practice and was sensitized to the various ways sex-

  uality was being policed.”11 This high sensitivity, together with skepti-

  cism toward mainstream media reporting on sexuality and relatively

  easy travel links to such infl uential US cities as New York and Washing-

  ton, DC, also help account for the emergence of a vibrant platform of

  left- leaning protest which underpinned the two revisionist approaches to

  the idea of “Patient Zero” from Toronto in the 1990s.12

  In their analysis of the fi lm, Knabe and Pearson drily note that “Zero

  Patience is a diffi cult fi lm to summarize.”13 Heeding their counsel, and

  given the extensive analysis the fi lm has received elsewhere, particularly

  in Knabe and Pearson’s excellent book, this chapter’s concern is with the

  fi lm’s production, distribution and reception, with only a brief outline of

  its contents. The Krever inquiry, on the other hand, has received much

  less historical attention. Thus, more space will be allotted to describing

  the inquiry’s genesis, internal workings, and proceedings, before the fi nal

  section of the chapter evaluates the relative effi cacy of these two Toronto-

  based interventions in refuting the dominant “Patient Zero” story.

  AIDS Theatricality and Transnationalism

  John Greyson’s fi lm has received a signifi cant amount of attention

  from other authors who have critiqued Randy Shilts’s vision of “Patient

  11. Susan Knabe and Wendy Gay Pearson, Zero Patience: A Queer Film Classic (Van-

  couver: Arsenal Pulp Press, 2011), 144.

  12. Ibid. See also Silversides, AIDS Activist, 12– 14.

  13. Knabe and Pearson, Zero Patience, 27.

  Ghosts and Blood 251

  Zero.”14 Writers have praised its wit, its creativity, and its energetic ex-

  pression of the spirit of protest generated through the treatment activism

  of groups including the AIDS Coalition to Unleash Power (ACT UP)

  and AIDS Action Now! Little argument is required, on the one hand,

  to demonstrate that a fi lm— and particularly one which appropriates the

  most self- consciously aware of cinematic genres: the musical— is theatri-

  cal, a term which can suggest the knowing adoption of roles, following a

  predetermined “script,” and illuminating particular moral messages. On

  the other hand, a commission of inquiry could benefi t from a few words

  of explanation to tease out the ways in which it could be viewed as a the-

  atrical performance.

  Like many other offi cial commissions before it, the Krever inquiry

  was set up by government to investigate a matter of concern to the state.

  These offi cial processes have been described by some commentators as

  “symbolic rituals within modern States” and, more boldly, “theatres of

  power.” Their work can be usefully divided into three stages: the inves-

  tigative, the persuasive, and the archival.15 It is during the investigative

  phase, when witnesses are called to deliver testimony, that an inquiry

  is at its most evidently theatrical. In many ways similar to a traditional

  courtroom, the commissioner sits at the head of the hearing room, fac-

  ing a room full of interested parties, their representatives (typically law-

  yers), members of the press, and the general public. The Krever inquiry

  was similar to others in that its proceedings were televised, with key ex-

  changes frequently excerpted for the evening news. With an eye to the

  evidentiary power of the second two phases of the inquiry, lawyers act-

  ing as counsel and representing interveners assembled panels of wit-

  nesses to give testimony and submit documents. This evidence would,

  they hoped, infl uence the writing of the commissioner’s report (which

  many would also hope to be persuasive) and inhabit the offi cial inquiry’s

  archive and thus serve as the articulation of an offi cial historical truth.

  Frequent interviews by counsel to journalists covering the inquiry also

  served as parallel attempts to shape the emergent historical truth.

  Both the Krever inquiry and Zero Patience were, in different ways,

  14. For critical responses to the fi lm, see Crimp, “Miserable Failure,” 124– 28; Treichler,

  Theory in an Epidemic, 312– 14; Wald, Contagious, 254– 56; and most recently Tiemeyer,

  Plane Queer, 191– 93.

  15. Adam Ashforth, “Reckoning Schemes of Legitimation: On Commissions of In-

  quiry as Power/Knowledge Forms,” Journal of Historical Sociology 3, no. 1 (1990): 1– 22.

  252

  chapter 5

  concerned with HIV/AIDS as a transnational phenomenon. Both were

  in dialogue with developments in other countries, such as public health

  measures and activist responses, and were attentive to the ways in which

  fl ows of bodies, ideas, and products, ranging from expertise to artistic

  works to blood products, crossed into and out of Canada. The Krever in-

  quiry had as its task to investigate the ways in which the Canadian blood

  system had caused the infections of thousands of Canadians with HIV

  and hepatitis during the 1980s. This complex industry was at its heart a

  transnational one, with a dizzying overlap of players, regulators, donors,

  and recipients, dispelling any notion of clearly articulated and carefully

  monitored national borders and health systems. The inquiry invited ex-

  perts from the United States to give testimony, and a substantial section

  of its report examined the response to HIV/AIDS in other resource- rich

  countries based on an extensive review of the international literature.

  Greyson’s fi lm drew on more than a decade of his experiences of gay

  activism and experimental art and video work in Canada, the United

  States, and Europe, work which would anchor him within the networks

  of activists who were involved in the tr
eatment activism of the late 1980s

  and early 1990s. This activism, though drawing its initial impetus from

  New York, spread widely and vigorously to cities in both the United

  States and Canada, as well as overseas.16 It dealt with a disease that did

  not recognize borders, in the context of states increasingly attempting

  to do so, particularly in terms of erecting travel restrictions on people

  living with HIV.17 The fi lm’s chances of success were from the outset

  based on the prospect of reaching international audiences at fi lm festi-

  vals, and its funding would involve backers in Canada and the United

  Kingdom.18 It is to the genesis of this project that we now turn.

  16. See Brier, Infectious Ideas, 156– 200; Mandisa Mbali, South African AIDS Activ-

  ism and Global Health Politics (Basingstoke, UK: Palgrave Macmillan, 2013), particularly

  107– 35.

  17. Crimp, “Miserable Failure,” 118.

  18. Anna Stratton, John Greyson, and Louise Garfi eld, “Release & Marketing Pro-

  posal,” draft, January 18, 1992, 1, fi le: Zero Patience— Marketing, Acc. 2003– 007– 05.486,

  John Greyson Collection, Film Reference Library, Toronto (hereafter cited as Grey-

  son Collection). Canadian fi nanciers included Telefi lm Canada, the Ontario Film Devel-

  opment Corporation, the Canadian Film Centre, the Canada Council, the Ontario Arts

  Council, and Cineplex Odeon Films; Channel 4 Television U.K. also provided funding;

  Zero Tabloid [tabloid- style promotional material] (Toronto: Cineplex- Odeon Films, 1993),

  5, folder 240, box 9, Michael Callen Papers, LGBT Community Center National History

  Archive, New York City (hereafter cited as Callen Papers).

  Ghosts and Blood 253

  Zero Patience for Accusations

  Between 1986 and 1990, John Greyson divided his time between Toronto

  and Los Angeles, where he spent half of the year teaching at a local arts

  college. In October 1987, a friend showed him the “Patient Zero” arti-

  cle featured on the cover of that month’s edition of California magazine.

  “Wait a sec, I thought. By 1987, they’d already identifi ed North Ameri-

  can cases of AIDS dating back to the late sixties, so this story was clearly

  suspect. Yet in the weeks and months that followed, Patient Zero was

  taken up by the mainstream media to such a degree that today it’s ac-

  cepted by many as a proven ‘fact.’ I decided to do a fi lm about the pol-

  itics of such dubious ‘facts,’ and Zero Patience is the result.”19 Greyson

  had not met Dugas while the fl ight attendant was still alive, despite their

  perigrinations bringing them to Toronto and New York concurrently

  during the early 1980s. He was, however, only one step removed, since

  two of his friends had had sex with him.20 Greyson explained, “In our

  fi lm, we never deny that Patient Zero was promiscuous. . . . We don’t re-

  ally think it’s that important. Lots of people, gay and straight, are pro-

  miscuous. We’re much more interested in why society needs a Patient

  Zero, a scapegoat that they can distance themselves from. The fi lm re-

  fuses to treat Patient Zero as a pariah— it tries to reclaim him, warts and

  all, as one of us.”21

  In 1990, John Greyson took up a directing residency at the Can-

  ada Film Centre in Toronto. As part of his program application, he had

  developed an outline for an AIDS musical, and in 1991 he wrote the

  script’s fi rst draft, researching information about the fl ight attendant’s

  life, international AIDS activist issues, and current theories and con-

  troversies regarding the disease’s “causes, cures and treatment.”22 A de-

  19. “The Whole Truth: Patient Zero Myth Debunked,” in Zero Tabloid, 3 Callen Pa-

  pers; emphasis in original. See Christine Gorman, “Strange Trip Back to the Future: The

  Case of Robert R. Spurs New Questions About AIDS.” Time, November 9, 1987, 75.

  20. Greyson mentions a friend named Michael; Greyson, recording C1491/41, tape 1,

  side A. The director was also friends with Ed Jackson, whose sexual contact with the fl ight

  attendant was discussed in the previous chapter.

  21. “Culture of Certainty? We Don’t Buy It!” in Zero Tabloid, 8, Callen Papers.

  22. “zero patience— Development Summary,” 23 October 1991, fi le: Zero Patience—

  Current, acc. 2003– 007– 05.0481, Greyson Collection. Among the critiques of the “Patient

  Zero” story that infl uenced Greyson was an extended book review of And the Band Played

  254

  chapter 5

  velopment outline for the fi lm hinted strongly at the direction it would

  take (and anticipated a point of resonance with the blood recipients who

  would later testify in the Krever inquiry): “Scientists, the media and gov-

  ernments all seemed more concerned with identifying and isolating the

  ‘cause’ of the plague than they were with fi nding and treating the mil-

  lions who are now infected.”23 Over the course of writing four subse-

  quent drafts, Greyson’s fi lm project received funding support from sev-

  eral Canadian arts councils, attracted colleagues from the fi lm center’s

  producing program as coproducers, and gathered interest from domestic

  and foreign distributors.24

  Drawing its inspiration from the efforts of groups such as ACT UP

  and video artists including Stuart Marshall, Greyson’s fi lm set out to

  challenge the orthodoxies of science and the media’s claims to represent

  truth. Embodying its aim of critiquing simplistic narratives spun by the

  media, the fi lm’s complicated story line and songs brim with witty refer-

  ences to AIDS activism of the 1980s and deliberately blend cinematic re-

  alist and surrealist touches. As cultural critics have noted, Greyson de-

  liberately calls attention to the constructedness of the story he tells, in

  contrast with Shilts, whose journalistic history attempts to erase such

  scaffolding.25 In the fi lm, Sir Richard Burton— the eminent Victorian ex-

  plorer famous for searching for the source of the Nile and for his fascina-

  tion with cross- cultural sexualities— is still alive, following “an unfortu-

  nate encounter with the Fountain of Youth.” He works as a taxidermist

  and curator at Toronto’s Natural History Museum, his character repre-

  senting an overconfi dent culture of scientifi c certainty. Responsible for

  developing a new exhibit for the museum’s Hall of Contagion, Burton

  decides to focus his work on “Patient Zero,” the French Canadian fl ight

  attendant blamed for bringing AIDS to North America. Meanwhile,

  Zero, the ghost of this otherwise unnamed fl ight attendant, is trapped in

  On by Duncan Campbell which accompanied the book’s British release: “An End to the

  Silence,” New Statesman, March 4, 1988, 22– 23. A clipping of this review accompanies

  other press materials in a funding application submitted by the producers in July 1992; fi le:

  Zero Patience Funding Application, acc. 2003– 007– 05.0485, Greyson Collection.

  23. John Greyson, “Zero Patience: Outline for a Musical,” 1, fi le: Zero Patience—

  Current, Acc. 2003– 007– 05.0481, Greyson Collection.

  24. The Producers [John Greyson, Louise Garfi eld, Anna Stratton], “Details of Pro-

  du
ction,” 2 July 1992, fi le: Zero Patience Funding Application, Acc. 2003– 007– 05.0485,

  Greyson Collection.

  25. Crimp, “Miserable Failure,” 127– 28.

  Ghosts and Blood 255

  a watery, limbo- like existence. Zero wishes for his story to be told and

  his life to be saved; mysteriously, his wish is partly granted. His ghost re-

  turns to the present day, arising in the middle of a gay bathhouse hot tub.

  To his sadness, however, Zero is invisible to everyone he encounters—

  the men in the bathhouse, his former lover, and his mother— to everyone,

  that is, except for Burton.

  The fi lm’s labyrinthine plot moves between several sites which would

  hold symbolic signifi cance for many North American people living with

  AIDS and their family members: a doctor’s offi ce, where Zero observes

  his former lover receiving treatment for an AIDS- related infection that

  threatens his eyesight; a gay bathhouse; and an ACT UP meeting at a

  community center, where Burton attempts to gather video evidence for

  his research. Much of the action also unfolds at the Natural History Mu-

  seum, where multiple struggles over the meanings and causes of AIDS

  take place. Burton interviews a doctor involved in the 1982 cluster study,

  and Zero’s mother as well. Initially convinced of Zero’s guilt, Burton ed-

  its his video footage into a montage that wrenches witness statements

  out of context and frames Zero as a deliberate disease disseminator.

  Burton even manages to manipulate Zero’s mother’s recorded testimony

  to make her appear to exclaim that “Zero was the Devil.”

  Zero confronts Burton on his duplicity and decides eventually to

  collaborate with him, determined to become visible and have his voice

  heard. As the two draw closer and eventually begin a romantic re-

  lationship, Burton gradually comes to doubt the certainties of his sci-

  ence and the story he is telling. He becomes particularly swayed when

  he and Zero come face- to- face— through a microscope view of a slide

  of Zero’s blood— with Miss HIV, a microscopic drag queen virus fl oat-

  ing in a bloodstream swimming pool, played by longtime AIDS activist

  Michael Callen. Miss HIV clarifi es what the 1982 cluster study had set

  out to establish and that Zero had not been identifi ed as the fi rst AIDS

 

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