Patient Zero and the Making of the AIDS Epidemic

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by Richard A. McKay

apartment and distribute some of his belongings as he had requested. As

  he had requested, I also wrote a letter of thanks to Air Canada for giving

  him a job that he loved and for treating him with respect and patience.

  Gaétan didn’t give me a lot of information about his youth, but I do

  374

  Epilogue

  think that he was harassed a fair amount for being gay. He spoke about

  aggressively and physically fi ghting those who taunted him. I think what

  many people took for arrogance was simply another instance of Gaétan

  determined to stand up for himself, to be himself. I remember early in

  our relationship that I had expressed some reservation about his dress;

  he met me later that day in full gay regalia . . . telling me, without words,

  that he would be who he was. This same, fi ghting spirit was evident

  when he went to the beach in 1983 and he made no attempt to disguise

  or cover up his Kaposi’s sarcoma lesions, defi antly staring back at those

  who stared at him. While I wasn’t there, he also told me how he had

  stood up alone to speak of his experience and needs at a gay meeting

  downtown. I assume this must have been the meeting in 1983.

  As I have said, despite being harassed by others at the bars and told

  that he should stay home, Gaétan did continue to go out and be himself

  while in Vancouver, though I’m sure that those responses, plus changes

  within him, were why he went out less and less and with far less joy. I

  don’t know how he dealt with his AIDS status when he met strangers,

  but it wasn’t something he could easily have hidden as his legs and torso

  had many KS lesions. Certainly, the man he was in a relationship with

  was well aware of his health situation. As a gay man, Gaétan was com-

  pletely imbued with the spirit of Stonewall, stronger and braver than

  many who were so critical of him. That spirit led him to embrace the sex-

  ual revolution in all its fullness; it also gave him immense strength when

  that whole world turned around on him and he was left so alone, not

  yet thirty, his beauty suddenly marked by lesions that seemed to signal

  death. Somehow, he kept himself together, fought on to be who he was

  and live as he wanted to live.

  Gaétan also told me that he was adopted. He had met his birth

  mother, though they were not close. In my visit with the family in 1972,

  he seemed a very integral and popular member of his adopted family— a

  particular favourite of his mother, who seemed totally supportive of his

  gay sensibility— lavishing praise on his fl amboyant clothes and interested

  in his shelves of cosmetics and creams. She and the whole family were

  very welcoming to me and we slept together in a guest room upstairs.

  I fi rst read about AIDS in the paper. My mother was far ahead of

  her time in her knowledge of nutrition and health. She had stressed to

  us very early the importance of disease prevention, the risks of catch-

  ing disease from strangers, the dangerous side effects of too much med-

  ication, and the importance of staying healthy by minimizing exposure

  Zero Hour 375

  to disease. I had been very critical of the carelessness with which Gaé-

  tan and my friends in San Francisco— in fact most gay men— took antibi-

  otics and dealt with STDs. Even doctors seemed to view STDs as amus-

  ing hiccups in life. Several of my friends had contracted hepatitis from

  sex and many were frequently taking antibiotics for a variety of other

  infections. I knew the lifestyle was unhealthy, and had been very wary;

  my fi rst assumption was that AIDS was caused by the breakdown of the

  immune system, the cumulative effect of the generally unhealthy life-

  styles of liberated gay men. All the expert advice early on was to limit

  the number of partners to reduce the strain on the immune system. My

  view only changed when I read an article by Larry Kramer in the Advo-

  cate, which, for the fi rst time, suggested that AIDS was a communicable

  disease, that the issue was likely not how many partners, but what you

  did with those partners.

  In the 1980s, AIDS information was very confusing and contradic-

  tory. The medical establishment seemed at odds with alternative views

  expressed in gay papers or articles in the alternative press. People were

  nervous of dangerous, debilitating drugs, such as AZT, suddenly be-

  ing prescribed to gay men. It was a time of great anxiety and not a lit-

  tle paranoia; almost everyone felt in the dark and argued for their ver-

  sions of the light. I think it was especially hard for gay doctors who had

  been trained to believe that they could solve almost all medical prob-

  lems, only to be confronted with something that they knew almost noth-

  ing about and that was killing their friends and patients.

  I was never contacted by Randy Shilts and never read his book,

  though have read about it. I was not aware that he was in Vancouver in

  1986.

  I think that I fi rst read about “Patient Zero” in reviews of And the

  Band Played On, but I’m not sure. I remember seeing a movie at a gay

  fi lm festival, Zero Patience, which provided a reasonably accurate view

  of Gaétan’s family. I never seriously considered that Gaétan was “Pa-

  tient Zero,” though I’m sure, given the times, that he did help to spread

  the virus. But Gaétan was no different than the vast majority of gay men

  then. If he had more partners than most, it was only because his per-

  sonality, looks, and job made that easier for him than for others. Gaé-

  tan was no ogre and no saint . . . just a young man exploring the world

  as it opened up for him in his twenties. Like almost all gay men who had

  grown up lonely in a homophobic world, he found being desired and at-

  tractive intoxicating and there seemed no reason not to make the most

  376

  Epilogue

  of all the love and joy suddenly available to him. While he certainly

  couldn’t remain sexually faithful to me, and lied to hide that from me,

  I never doubted the purity of his heart or the reality of his love; he was

  a generous lover, friend, and family member, a young man of immense

  charm with an intoxicating sense of humour, who took intense joy in

  making people laugh, whose smile was truly magnetic. I remember going

  to a T- Dance at John Barley’s, likely in the summer of 1983, and seeing

  him there with his boyfriend, dancing with great joy and abandon, bare-

  chested, his shirt rolled up and held high above his head, whirling in the

  air between his outstretched arms, his whole body lost to the music. He

  was a compelling fi gure, beautiful and brave— still very, very young, defi -

  ant in the face of disease and death just as he had always been defi ant in

  the face of all that had threatened to limit his joy in life.

  Appendix

  Oral History Interviews

  The author recorded fi fty- two interviews— fi fty in English and two in

  French— on audiocassette in 2007 and 2008. These recordings were

  later converted to digital fi les, and the English interviews were then tran-

  scribed by the author’s mother, Jane McKay. Of the fi fty- two interviews,
<
br />   agreement was obtained for fi fty to be archived at the British Library,

  under the collection title Imagining Patient Zero: Interviews about the

  History of the North American HIV/AIDS Epidemic. The collection in-

  cludes audiocassette tapes, digitized copies, and verbatim transcripts.

  All but one of the interviewees assigned their copyright in the record-

  ings to the British Library; the author and Robin Metcalfe have retained

  their copyrights for the duration of their lifetimes, after which their

  rights are transferred to the British Library. All the recordings are cat-

  aloged on the British Library Sound and Moving Image catalog (http://

  sami .bl .uk) and can be accessed at the British Library, subject to any ac-

  cess restrictions requested by individual interviewees and the author.

  Number

  Date

  Location

  Interviewee

  C1491/01

  July 6, 2007

  Los Angeles

  Don Spradlin

  C1491/02

  July 6, 2007

  Los Angeles

  Zvi Howard Rosenman

  C1491/03

  July 10, 2007

  San Francisco

  George Rutherford

  C1491/04

  July 12, 2007

  San Francisco

  Daniel Detorie

  C1491/05

  July 16, 2007

  San Francisco

  Jay Levy

  C1491/06

  July 19, 2007

  San Francisco

  Rink Foto

  C1491/07

  July 19, 2007

  San Francisco

  Mervyn Silverman

  C1491/08

  July 22, 2007

  San Francisco

  Hank Wilson

  C1491/09

  July 24, 2007

  San Francisco

  Andrew Moss

  Not deposited*

  July 26, 2007

  San Francisco

  Selma Dritz

  C1491/10

  July 27, 2007

  San Francisco

  Marcus Conant &

  Joseph Robinson

  Number

  Date

  Location

  Interviewee

  C1491/11

  July 27, 2007

  San Francisco

  Paul Volberding

  C1491/12

  July 28, 2007

  San Francisco

  Josh Lancaster

  C1491/13

  July 28, 2007

  San Francisco

  Ken Maley

  C1491/14

  July 29, 2007

  San Francisco

  Peter Roberts

  C1491/15

  July 29, 2007

  San Francisco

  Ross Murray

  C1491/16

  August 28, 2007

  Vancouver

  Richard Mathias

  C1491/17

  August 28, 2007

  Vancouver

  Gordon Price

  C1491/18

  August 31, 2007

  Vancouver

  Brian Willoughby

  C1491/19

  September 3, 2007

  Vancouver

  Noah Stewart

  C1491/20

  January 8, 2008

  Vancouver

  Terry Twentyman

  C1491/21

  March 28, 2008

  Miami

  William Darrow

  C1491/22

  April 8, 2008

  New York

  Michael Denneny

  C1491/23

  April 14, 2008

  New York

  Larry Kramer

  Not deposited†

  April 24, 2008

  New York

  Alvin Friedman- Kien

  C1491/24

  April 25, 2008

  New York

  Richard Berkowitz

  C1491/25

  April 28, 2008

  New York

  Lawrence Mass

  C1491/26

  June 10, 2008

  Vancouver

  Barbara Dunn, Elaine

  Watson & Janice Miller

  C1491/27

  June 11, 2008

  Vancouver

  Spencer Macdonell

  C1491/28

  June 11, 2008

  Vancouver

  Alan Herbert

  C1491/29

  July 9, 2008

  Montreal

  Richard Morisset

  C1491/30

  July 9, 2008

  Montreal

  Christos Tsoukas

  C1491/31

  July 10, 2008

  Montreal

  Ross Higgins

  C1491/32

  July 10, 2008

  Montreal

  Norbert Gilmore

  C1491/33

  July 14, 2008

  Montreal

  Jean Robert

  C1491/34

  July 25, 2008

  Halifax

  Desiree Conn

  C1491/35

  July 31, 2008

  Halifax

  Rand Gaynor & Robin

  Metcalfe

  C1491/36

  August 1, 2008

  Halifax

  Eric Smith

  C1491/37

  August 19, 2008

  Vancouver

  Jacques Menard

  C1491/38

  August 21, 2008

  Vancouver

  Richard Bisson

  C1491/39

  August 27, 30 &

  Toronto

  Douglas Elliott

  September 6, 2008

  C1491/40

  August 30, 2008

  Toronto

  Erica Moghal

  C1491/41

  September 2, 2008

  Toronto

  John Greyson

  C1491/42

  September 4, 2008

  Toronto

  André Picard

  C1491/43

  September 5, 2008

  Toronto

  Rosemary Barnes

  C1491/44

  September 7 & 9, 2008

  Toronto

  Robert (Bob) Tivey

  C1491/45

  September 9, 2008

  Toronto

  Franco Polillo

  C1491/46

  September 10, 2008

  Toronto

  Horace Krever

  C1491/47

  September 11, 2008

  Toronto

  Pierre- Claude (Pedro)

  Levaque

  C1491/48

  September 14, 2008

  Toronto

  Ed Jackson

  C1491/49

  September 15, 2008

  Toronto

  Theresa Dobko

  C1491/50

  September 15, 2008

  Toronto

  Ron Rosenes

  Note: Italic type denotes a pseudonym.

  * The author and Debbie Dritz, Selma Dritz’s daughter, jointly decided not to deposit the interview. Readers are encouraged to consult instead Selma Dritz’s reminiscences in Sally Smith Hughes’s The AIDS Epidemic in San Francisco at the Bancroft Library, University of California– Berkeley.

  † A signed waiver was never returned, pending its review by New York University’s attorney, thus the interview was not used for research purposes nor deposited.

  Bibliography

  Archival Materials

  Canada

  Halifax

  Sir James Dunn Law Library, Dalhousie University

  Exhibits of the Commission of Inquiry on the Blood System in Canada

  AIDS Vancouver: Exhibits of the British Columbia hearings, March

  1994, xlix.

  Montreal

  Bibliothèque et Archives nationales du Québec

  Formu
laire de mariages

  Ottawa

  Library and Archives Canada

  Air Canada fonds

  Canadian Association for Journalists, acc. 1990– 0395

  Census of Canada, 1911

  Telephone directories

  Quebec City

  L’Aéroport international Jean- Lesage de Québec

  Institutional records

  Toronto

  Canadian Lesbian and Gay Archives

  Accession 2014– 054

  Records of the AIDS Committee of Toronto

  AIDS Memorial Committee fi les

  The Film Reference Library, Toronto International Film Festival Group

  John Greyson Collection

  380

  Bibliography

  Vancouver

  British Columbia Gay and Lesbian Archives

  Periodical clippings

  Personal Papers of Ray Redford

  United Kingdom

  London

  Personal and Professional Papers of Joseph Sonnabend

  United States

  Bethesda, MD

  History of Medicine Division, Archives and Modern Manuscripts Collection,

  National Library of Medicine

  AIDS Correspondence (TRACER) archives, 1982– 1990. Offi ce of the

  Assistant Secretary for Planning and Evaluation, US Department of

  Health and Human Services, MS C 607.

  National Commission on Acquired Immune Defi ciency Syndrome Rec-

  ords, 1983– 1994, MS C 544.

  Los Angeles

  ONE National Gay and Lesbian Archives at the USC [University of South-

  ern California] Libraries

  Jim Kepner Collection

  Miami

  Personal and Professional Papers of William W. Darrow

  New York City

  Columbia Center for Oral History Archives, Rare Book and Manuscript Li-

  brary, Columbia University in the City of New York

  Physicians and AIDS Oral History Project

  Reminiscences of Neil Schram, 1996

  Reminiscences of Dan William, 1996

  Lesbian, Gay, Bisexual and Transgender Community Center National His-

  tory Archive

  Michael Callen Papers

  Manuscripts and Archives, New York Public Library, Astor, Lenox, and Til-

  den Foundations

  Gay Men’s Health Crisis Records

  Karla Jay Papers

  Lawrence Mass Papers

  Providence, RI

  John Hay Library, Brown University

  St. Martin’s Press Archive

  Bibliography 381

  San Francisco

  Gay, Lesbian, Bisexual, Transgender Historical Society

  AIDS Ephemera Collection

  Linda Alband Collection of Randy Shilts Materials

  Frank Robinson Papers

  Dan Turner Papers

  LGBTQIA Center, San Francisco Public Library

  Randy Shilts Papers (GLC 43)

  San Francisco History Center, San Francisco Public Library

  San Francisco Department of Public Health AIDS Offi ce Records (SFH 4)

  Archives and Special Collections, UCSF Library and Center for Knowledge

 

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