Ellen lucked into a parking space not half a block from PAVE headquarters. For a few years after its inception in the mid-eighties, PAVE had been a true grassroots organization, run from the kitchen tables of its two founders—Cheri Sanderson and Sally Lynch, both of whom were convinced that their children had been irreparably damaged by vaccinations. One family at a time, the two mothers discovered they were not alone. And now, through vision, patience, and hard work, PAVE had become a major force, with interest and even some support up to the highest levels of Congress, in addition to tens of thousands of supporting members. The words “Research,” “Education,” and “Choice,” emblazoned on their logo, expressed the agency’s goals.
“We are not a bunch of Carrie Nations charging into immunization centers with axes,” Cheri had explained during Ellen’s first volunteer-orientation session. “But we are tough when we have to be. We will not stop until the powers that be recognize the need for research on the immediate and long-term effects of vaccines, as well as the critical need for public education and ultimately parental choice when it comes to vaccinating our children.”
PAVE had its vehement detractors in the scientific, pediatric, infectious disease, and political arenas, but with each passing year, morbidity statistics; clinical disasters; well-attended, PAVE-sponsored scientific conferences; and parents who experienced what they felt certain was a cause-effect relationship between vaccinations and their children’s disabilities added to the organization’s influence, membership, and war chest.
In the early nineties, the now tax-exempt corporation moved its extensive library, dozens of drawers of case files, seven-person staff, and cadre of committed volunteers to the second floor of a brownstone on 18th Street between DuPont Circle and Adams-Morgan. Following the disaster with Lucy, Ellen had begun to send in modest donations. Later, she took the intensive workshop for volunteers conducted by Cheri and became qualified to man the phones. Then, a year or so after that, word was passed on to PAVE of the establishment of a consumer seat alongside the scientists and physicians on the federal commission evaluating Omnivax.
Ellen was told by Cheri and Sally that, as a retired middle school science teacher without a track record of militancy and confrontation on the vaccine issue, she would be the perfect person for the job. Ultimately, the powers at the FDA agreed. Ellen suspected that those who offered her the appointment were certain either that she would remain relatively silent, or that the scientists and physicians on the panel could easily preempt her views if they had to. Not that it mattered. She was only one vote out of twenty-three, and support for the megavaccine and its thirty components was overwhelming from the start. Even if she opposed the project, which in fact she did, it was clear from the first meeting of the committee that the final tally would stand at twenty-two to one.
The door to the PAVE offices opened into a crowded work area with half a dozen desks, all manned at the moment. As Ellen stepped into the room, the staff on hand rose as one and applauded. She did her best to wave them all back to their seats, then smiled good-naturedly and bowed. Over the past two-plus years, they had all received frequent briefings of the Omnivax sessions, and at times verbatim transcripts. They had all heard stories of how, armed with epidemiological and research data she had painstakingly accumulated, as well as affidavits from experts supporting the PAVE positions, she had stood up to some of the leading proponents of expanding the scope of immunizations. And as often as not, she seemed to have held her own.
“Please, please,” she said, “that’s almost enough applause. You there, a little louder, please. Much better. Now, those of you who desire to, and have washed themselves according to my protocol, may come forward, kneel, and kiss my ring.”
“Hey, where you been?” Sally Lynch called out from the doorway.
“A little trouble with Lucy at school,” Ellen replied. “Nothing serious.”
“Well, Cheri’s late, too, for a change. She’ll be here in a few minutes unless she isn’t. She says she has big news for us.”
In her mid-forties, Sally, tall, dark-haired, and businesslike, was more introspective and far less flamboyant than her co-director. It was a perfect match—one working behind the scenes, the other in front of the cameras, yet both possessing a high degree of intelligence, compassion, and drive. If Sally had a shortcoming, it was her extreme intensity, which sometimes clouded her judgment and at other times overwhelmed her patience. But that ferocious commitment was understandable. Within hours of receiving his routine vaccination shot, her six-month-old son, Ian, developed a temperature of over 106, had a seizure, and died. Just like that.
Sally’s office was as well organized and neat as Cheri Sanderson’s was cluttered. On one wall was a professionally made, three-foot-square, multicolored graph showing that the number of autistic children seeking state services in California more than doubled in the eighties and nearly quadrupled in the nineties. The other walls were covered with dozens of framed photographs, most of them of autistic children, whose condition, their parents were certain, was caused by vaccinations. One of the photos, an eight-by-ten directly behind Sally’s desk, was of Lucy. Tucked into the corner of the frame was a heartbreaking snapshot of the girl on a swing, taken a few weeks before her catastrophic transformation.
“Coffee?” Sally offered.
“No thanks. I’m already buzzed.”
“So, in a few more days it’s over,” Sally said, referring to the impending commission vote on Omnivax—the subject of this morning’s meeting of the three of them.
“So I hear.”
“Any headway?”
“You mean in changing votes? What do you think?”
Sally slammed her fist on the desk.
“Gosh, but this whole Omnivax business is frustrating,” she said. “Look at this, Ellen, look. It’s a research report put out by Congress. Congress! ‘Vaccine Controversies.’ Can you imagine? At last they’re asking questions. All of a sudden, they care. Here, check this out. All the drug manufacturers are being required by the FDA and EPA to remove mercury from their childhood vaccines. Do you know how many millions of kids got shot up before anyone even thought to take a look at the mercury situation? Here, look, DPT and polio vaccines modified; rotavirus anti-diarrhea vaccine recalled because of infant bowel injury and deaths; hepatitis B vaccine being reexamined. Ellen, the Omnivax forces can’t be allowed to win.”
Ellen sighed and stared out the window. Nothing Sally was showing her now was news to her. Her small study at home was overflowing with notebooks, textbooks, xeroxed articles, and computer printouts. Over the past two-plus years she had transformed herself from a concerned grandma to an expert on vaccinations and vaccines. True, there had been some victories, like the mercury removal and the rotavirus vaccine recall. But there was also an impressive regiment of respected and renowned scientists and pediatricians who were armed with data—valid or flawed, who could say?—showing the number of lives to be saved by each and every one of the vaccines slated for inclusion in Omnivax. Thousands upon thousands of lives.
“Sally,” Ellen said finally, “you and I both know the power and influence of those pushing this thing, the deans of medical schools, professors of pediatrics, to say nothing of the President and his wife.”
“Hey, wazzapnin’?”
Cheri Sanderson bounced into the room, a cup of coffee in one hand, a bulging leather portfolio in the other.
Five-three, if that, Cheri was a kinetic ball of energy and optimism.
“Ellen tells me the vote’s going to be twenty-two to one,” Sally said.
“What did you expect?” Cheri replied. “These people were handpicked because they were going to vote yes. Hell, the pharmaceutical giants finance many of their labs. How would you expect them to vote? You’ve done great, Ellen. You stood your ground and presented our issues as well as anyone could have.”
“Thanks. I’m a little disappointed I haven’t had more of an impact, but like you said, the deck was stacked
from the beginning. So, what’s this news you have?”
Cheri paused dramatically.
“The news is, according to this press release from her office, the antichrist of sensible vaccine thought, Lynette Marquand herself, will be addressing the nation from the FDA on the day of the final panel debate on Omnivax.”
“Nice timing,” Ellen said. “The final vote is scheduled for two days after that meeting.”
First Lady Lynette Marquand and Secretary of Health and Human Services Dr. Lara Bolton were the heavyweight champions of mass vaccinations. Four years ago, Lynette’s husband, Jim, had narrowly won a bitter, hard-fought election. Now, with just a few months to go, he was in a dogfight again, neck and neck with the man he had beaten by only two points and just a dozen electoral votes.
One of his campaign promises—the one with the greatest likelihood of coming to fruition unscathed—was the development and distribution of a supervaccine. The vaccine, Omnivax, was to be given to infants early in life, and eventually mandated for everyone. Containing up to thirty different antigens—killed or modified viruses and bacteria—it would be given as a shot for now, and orally as soon as research, already well under way, permitted it. The immune systems of the recipients would learn to make antibodies against the various germs so that, should they encounter any of them in the future, their defenses would be primed and ready to fight them off. Editorials had equated Jim Marquand’s bold pronouncement with the John Kennedy promise to put a man on the moon. Now, in this arena at least, he was looking good.
“What subtle timing,” Ellen said. “Lynette Marquand is out stumping for her husband, who is getting boatloads of PAC money from the pharmaceutical industry.”
“And like Cheri said, a lot of these doctors and professors on your panel owe their careers to vaccine research grants from various drug manufacturers,” Sally added.
“So,” Cheri asked, “do we have any bombshell Ellen can explode at that session? If Lynette’s media people do their jobs as well as they have so far, there should be a gaggle and a half of reporters covering the show.”
“I don’t know what to say,” Ellen replied. “Week after week, month after month, I’ve been searching for holes in what the committee is proposing, breaking down every component of Omnivax, looking for some kind of scientifically valid study that would confirm that one of the thirty vaccines was flawed—or even the opposite, if one of the components was flawless.” She gestured to the graph behind Sally’s desk. “I can’t even find any hard data that prove vaccinations contribute to the increase in autism. Increased awareness, one expert tells me. Misdiagnosis, chimes in another. Environmental factors, pipes up someone else. Anecdotal, pooh-poohs a professor.”
She calmed herself before continuing.
“When I first joined the committee, my teeth were bared and I was ready to chew them all apart for what they have and have not done. I still want to do that, believe me, I do. But there’re so few scientific studies, even on our side. Nothing about this whole vaccination business is clear-cut except that we need to know more—much more. In the meantime, the other side is going to win this particular battle, and Omnivax is about to leap into our culture. You and Cheri and everyone associated with PAVE, including me, have got to resolve to keep on fighting for the scientific truth, whatever that is.”
Sally looked clearly frustrated.
“All this time, all your studying, and you haven’t turned up anything about any of the components of Omnivax?” she asked.
“I’m still working on it,” Ellen replied. “Honest, I am.”
She felt the chill in Sally’s expression and hoped the woman couldn’t tell that, in fact, she was holding back some information. She believed that neither Sally nor Cheri could be trusted to remain silent until Rudy Peterson’s work on their behalf was further along, especially with Omnivax about to be approved. Rudy had been sifting through information on the supervaccine components for well over a year now without turning up anything damning. There was, however, clinical data on one of the components that he felt was limited in scope and obtained by research that was a decade old and possibly shaky in design. That component was Lasaject, a vaccine against the virus responsible for causing deadly Lassa fever.
Rudy was steadfast in maintaining that the data might still support the conclusions that the vaccine was safe. He needed more time—time during which the vaccine’s manufacturer was unaware of his investigation.
Ellen felt certain that this wasn’t the moment to tell the aggressive directors of PAVE that while there was no immediate chance of defeating Omnivax, there was lingering hope at least of denting it.
CHAPTER 7
LOOK, OFFICER, I DON’T WANT TO BE A PEST, BUT this woman is really ill and she’s running around the city somewhere, certain that some people are trying to kill her. Are you sure word is out?”
“Ma’am, I promise you. This is the fourth day you’ve called. Everyone here knows about Kathy Wilson. We have every car and every officer on the street looking out for her. We’ll call you as soon as we find her.”
Four days had passed since Kathy’s call, and not another word from her until just now. When Nikki returned home from the office, there was a rambling message from her on their answering machine, but no hint on Caller ID as to the origin of the call. The disjointed, vitriolic message was terrifying as much for its tone as its content. Kathy Wilson was clearly insane.
Joe Keller continued to be as comforting as possible under the circumstances without being patronizing, as the police continued to be. He was, as Nikki would have expected, fascinated with the rapid development of what he assumed from her description were neurofibromas. Twice he began a tutorial teaching session with her on the differential diagnosis of the condition, but when it was apparent she was hearing only a fraction of what he was saying, he set his marker down.
Nikki paced restlessly about their two-bedroom flat, using a remote to change the five-disc CD player from Mahler to Carly Simon to Miles Davis to either of the two Bluegrass Ramblers CDs, and back. Every flat surface in the apartment seemed to hold a half-empty cup of tea or coffee. More than once she had to battle back the urge to go out and buy a pack of Merits—her brand when she quit smoking more than ten years ago. The living room was strewn with textbooks, each open to some aspect of either neurofibromas or acute paranoia. Outside, a steady rain had let up some, but the wind was howling.
Nikki flipped to the Mahler again—a powerful recording of his Symphony No. 7—and then knelt down by one of her medical textbooks. Tuberous sclerosis, von Recklinghausen’s disease, Sturge-Weber syndrome, von Hippel-Lindau Syndrome. The arcane collection of diseases that included neurofibromas were, for the most part, the result of genetic mutations on any one of several different chromosomes. All of them were accompanied by some sort of brain dysfunction, either by way of cancers or the actual growth of neurofibromas in the central nervous system. The best Nikki could come up with was that Kathy Wilson had some sort of variant of von Recklinghausen’s disease, the most common of the conditions, reportedly occurring in one out of every 3,500 individuals. Von Recklinghausen’s disease—outcome: fatal, sometimes within a few years from diagnosis. Treatment: none.
The jangle of the phone startled her.
“Kathy!” she exclaimed as she scrambled across her pathology text and snatched up the receiver.
“Nikki, Joe Keller here.”
“Oh, hi. Thanks for calling. No word yet. Every time the phone rings I jump out of my skin thinking it’s her.”
For a few seconds there was an uncomfortable silence.
“Nikki, listen, dear,” Keller said finally, “Kathy Wilson isn’t going to be calling.”
Nikki sank back against the sofa, a veil of disbelief already descending over her mind.
“Oh, no,” she said.
“I’m sorry to have to tell you this over the phone. I couldn’t think of a way to trick you into coming in so I could tell you in person. Nikki, Kathy’s dead. S
he was run down by a truck on Washington Street about an hour ago. Her body’s here now.”
No, no, no!
“Joe, I . . . she left a message here just a few hours ago. Oh, this is terrible.”
“Nikki, you tried your best.”
“I could have done something. I should have said something different when we last spoke.”
“Nikki, you’ve done everything you could do. I know you have. From the looks of her fibromas, I would say Kathy was in for a rapidly progressive illness, visits to doctors, and most likely premature death. If the reports on her behavior immediately before she died are true, this accident may actually have been a manifestation of her disease running its course.”
“What happened?”
“I don’t know completely yet, but I will. The police will be by any minute. I heard that she was in a bar, disrupting the place. The security people escorted her out, and she suddenly broke away and raced directly into the street. The driver of the truck said he never even had a chance to put on his brakes.”
“Oh, God.”
“Nikki, I know this is hard, but can you come in to identify her?”
Nikki swiped at her tears with her sleeve. Off and on over the past week she had feared, even expected, the worst. Now it had happened.
“I’ll be there in ten minutes,” she said.
BABIES BEATEN AND shaken to death, total body burns, shotgun blasts to the face, long-term submersions, accidents of almost every imaginable kind—over her years in the coroner’s office, Nikki had encountered them all. But nothing prepared her for the horrible anguish of seeing Kathy Wilson’s battered corpse, stretched out on the stainless-steel table right next to the one where Roger Belanger had been autopsied just days before.
Fatal Page 7
