Copyright © 2019 by The Williams Literary Trust
All rights reserved.
Published in the United States by Random House, an imprint and division of Penguin Random House LLC, New York.
RANDOM HOUSE and the HOUSE colophon are registered trademarks of Penguin Random House LLC.
Portions of this work were originally published, sometimes in different form, on the author’s blog, julieyipwilliams.wordpress.com.
LIBRARY OF CONGRESS CATALOGING-IN-PUBLICATION DATA
Names: Yip-Williams, Julie, author.
Title: The unwinding of the miracle: a memoir of life, death, and everything that comes after / by Julie Yip-Williams.
Description: New York: Random House, [2019]
Identifiers: LCCN 2018031944 | ISBN 9780525511359 (Hardback) | ISBN 9780525511366 (ebook)
Subjects: LCSH: Yip-Williams, Julie, 1976–2018. | Vietnamese Americans—Biography. | Colon (Anatomy)—Cancer—Patients—United States—Biography.
Classification: LCC E184.V53 Y57 2019 | DDC 973/.04959220092—dc23 LC record available at lccn.loc.gov/2018031944
Ebook ISBN 9780525511366
randomhousebooks.com
Book design by Jo Anne Metsch, adapted for ebook
Cover design: Rachel Ake
v5.4
ep
Contents
Cover
Title Page
Copyright
Prologue
1. Death, Part One
2. Life
Summer and Fall 2013
3. The Odds
4. Seeing Ghosts
5. The Warfare, and the Weapons
6. Deals with God
7. Cea, Pet, Mri…
8. The Bliss in Making the Journey Alone
9. The Secret
10. Moments of Happiness
11. An Adventure with the Chinese Medicine Man
2014
12. The Surly Bonds of Earth
13. The Crossroads of the World
14. Hope
15. I Am Lost
16. A Nightmare
17. The Hand of God
18. A Love Story
19. Fate and Fortune
20. Numbers, a Reassessment
21. Take Your Victories Where You Can
22. The Cancer Is in My Lungs
2015
23. From Darkness to Strength
24. “Keeping It in the Stomach”
25. A Day in My Life
26. Invincibility
27. Dreams Reborn
28. Solitude
29. A Game of Clue
30. The Gift of Grief
2016
31. In Which the Yips Come to America
32. Living
33. Insanity
34. Chipper
35. Courage and Love
36. Hate
2017
37. Faith, a Lesson of History
38. Home
39. Believe
40. Pain
41. Death, Part Two
42. Preparing
43. Love
2018
44. The Unwinding of the Miracle
Epilogue by Joshua Williams
Dedication
Acknowledgments
About the Author
Prologue
Hello, welcome.
My name is Julie Yip-Williams. I am grateful and deeply honored that you are here. This story begins at the ending. Which means that if you are here, then I am not. But it’s okay.
My life was good and my life was complete. It came to so much more than I ever thought possible, or than my very humble beginnings would have given me the right to expect. I was a wife, a mother, a daughter, a sister, a friend, an immigrant, a cancer patient, a lawyer, and now a writer. I tried to live always with good intentions and a good heart, although I am sure I have hurt people along the way. I tried my best to live a full, rewarding life, to deal with the inevitable trials with grace, and to emerge with my sense of humor and love for life intact. That’s all. Even though I am dying in my early forties, and leaving my precious children behind, I am happy.
My life was not easy. That I survived infancy was something of a miracle, that I made it to America, also a miracle. Being born poor and blind in Vietnam on the losing side of a bloody civil war should have defined my life and sealed my fate. Those things marked me, but they did not stop me. Dying has taught me a great deal about living—about facing hard truths consciously, about embracing the suffering as well as the joy. Wrapping my arms around the hard parts was perhaps the great liberating experience of my life.
Directly or indirectly, we all experience the hard parts. The events that we hear about on the news or from friends, those tragedies ending in death that happen to other people in other places, which make us sad but also relieved and grateful as we think, There but for the grace of God…—destructive hurricanes and earthquakes, violent shootings and explosions, car accidents, and of course, insidious illnesses. These things shake us to the core because they remind us of our mortality, of how impotent we truly are in the face of unseen forces that would cause the earth to tremble or cells to mutate and send a body into full rebellion against itself.
I set out here to write about my experience of that, both the life lived and the trials endured—neither comprehensively, you understand, but enough to fully show you the distance I traveled and the world in which I made my life. And what began as a chronicle of an early and imminent death became—if I may be very presumptuous—something far more meaningful: an exhortation to you, the living.
Live while you’re living, friends.
From the beginning of the miracle, to the unwinding of the miracle.
JULIE YIP-WILLIAMS
February 2018
1
Death, Part One
March 1976, Tam Ky, South Vietnam
When I was two months old, my parents, on orders from my paternal grandmother, took me to an herbalist in Da Nang and offered the old man gold bars to give me a concoction that would make me sleep forever. Because I was born blind, to my Chinese grandmother, I was broken. I would be a burden and an embarrassment to the family. Unmarriageable. Besides, my grandmother reasoned, she was showing me mercy—I would be spared a miserable existence.
That morning, my mother dressed me in old baby clothes soiled with brownish-yellow stains from my sister’s or brother’s shit that she had not been able to wash away, even after countless scrubbings. My grandmother had ordered my mother to put me in these clothes and now stood in the doorway to my parents’ bedroom, watching my mother dress me. “It would be a waste for her to wear anything else,” she said when my mother was finished, as if to confirm the rightness of her instruction.
These were the clothes in which I was to die. In desperate times such as those, there was no point in throwing away a perfectly good baby outfit on an infant that was soon to become a corpse.
Our family drama played out in the red-hot center of the Cold War. South Vietnam had been “liberated” by the North eleven months earlier, and a geopolitical domino came crashing into the lives of the Yips.<
br />
By 1972, the war had turned decidedly against the South, and my father was terrified of losing what few possessions he had risking his life for a country for which he, as an ethnic Chinese man, felt little to no nationalistic pride. In his four years of military service, my father never talked to anyone in his family during his brief home leaves about what horrible things he had seen or done. His mother’s attempts to spare him the ugliness of war by using bribery to get him a position as a driver for an army captain had not been as successful as they had all hoped. He found himself driving into enemy territory, uncertain where the snipers and land mines lurked, and sleeping in the jungle at night, afraid of the stealthy Vietcong slitting his throat while he slept on the jungle floor, and then jerking into motion by explosions that ripped open the silence of a tenuous calm. In the end, the constant fear of death—or, worse yet, of losing a limb, as had happened to some of his friends—overwhelmed whatever notions he had of honor and his fears of being labeled a coward. One day, he walked away from camp on the pretext of retrieving supplies from his jeep and didn’t look back. For a week, he walked and hitchhiked his way to Saigon, the capital of South Vietnam, where he hid in Cholon, an old district inhabited by at least a million ethnic Chinese. Cholon was a place with such bustling activity and such a large population of those not loyal to the war effort that he could hide while still being able to move freely about the community.
My grandmother, to whom my father managed to get word of his whereabouts, trusted no man’s ability to remain faithful, including her son’s, and suggested to my mother that she join my father in Saigon. And so my mother, with my two-year-old sister, Lyna, in one arm and my infant brother, Mau, in the other, went to Saigon, and there they lived in limbo with my father until the end of the war, waiting until it was safe for him to return to Tam Ky without the fear of being imprisoned or, even worse, forced to continue military service in a rapidly deteriorating situation. It was not the time to have another child.
When Saigon fell on April 30, 1975, my parents rejoiced with the rest of Saigon, not because they believed in the new Communist regime but because the war was finally coming to an end. As Saigon changed hands, they celebrated by joining the feverish mobs ransacking abandoned stores and warehouses, taking tanks of gas and sacks of rice and whatever else their hands could carry away. They celebrated by welcoming the news of my pending arrival into this world, and after Saigon fell, they finally went home to Tam Ky, where I came into the world on an unremarkable January evening eight months later. I weighed a little more than three kilograms (between six and seven pounds), big by Vietnamese standards, but not so big that my mother and I were at the risk of dying during childbirth. Hospitals were filthy, and cesareans were not an option in those days; no one knew how to perform them, except maybe in Saigon. My father named me 莉菁, which is pronounced “Lijing” in Mandarin Chinese and “Lising” in Hainanese Chinese, and translated literally means “Quintessence of Jasmine.” My name was intended to convey a sense of vibrancy, vitality, and beauty. My mother, who had waited so long for a new baby, was thrilled. And so was my grandmother—at first, anyhow. Two months later, wrapped in my brother and sister’s old baby clothes, I was in my father’s arms, on a bus, making the two-hour trip north to Da Nang on Highway 1, sentenced to death.
2
Life
July 14, 2017, Brooklyn, New York
Dear Mia and Isabelle,
I have solved all the logistical problems resulting from my death that I can think of—I am hiring a very reasonably priced cook for you and Daddy; I have left a list of instructions about who your dentist is and when your school tuition needs to be paid and when to renew the violin rental contract and the identity of the piano tuner. In the coming days, I will make videos about all the ins and outs of the apartment, so that everyone knows where the air filters are and what kind of dog food Chipper eats. But I realized that these things are the low-hanging fruit, the easy-to-solve but relatively unimportant problems of the oh so mundane.
I realized that I would have failed you greatly as your mother if I did not try to ease your pain from my loss, if I didn’t at least attempt to address what will likely be the greatest question of your young lives. You will forever be the kids whose mother died of cancer, have people looking at you with some combination of sympathy and pity (which you will no doubt resent, even if everyone means well). That fact of your mother dying will weave into the fabric of your lives like a glaring stain on an otherwise pristine tableau. You will ask as you look around at all the other people who still have their parents, Why did my mother have to get sick and die? It isn’t fair, you will cry. And you will want so painfully for me to be there to hug you when your friend is mean to you, to look on as your ears are being pierced, to sit in the front row clapping loudly at your music recitals, to be that annoying parent insisting on another photo with the college graduate, to help you get dressed on your wedding day, to take your newborn babe from your arms so you can sleep. And every time you yearn for me, it will hurt all over again and you will wonder why.
I don’t know if my words could ever ease your pain. But I would be remiss if I did not try.
My seventh-grade history teacher, Mrs. Olson, a batty eccentric but a phenomenal teacher, used to rebut our teenage protestations of “That’s not fair!” (for example, when she sprang a pop quiz on us or when we played what was called the “Unfair” trivia game) with “Life is not fair. Get used to it!” Somehow, we grow up thinking that there should be fairness, that people should be treated fairly, that there should be equality of treatment as well as opportunity. That expectation must be derived from growing up in a rich country where the rule of law is so firmly entrenched. Even at the tender age of five, both of you were screaming about fairness as if it were some fundamental right (as in it wasn’t fair that Belle got to go to see a movie when Mia did not). So perhaps those expectations of fairness and equity are also hardwired into the human psyche and our moral compass. I’m not sure.
What I do know for sure is that Mrs. Olson was right. Life is not fair. You would be foolish to expect fairness, at least when it comes to matters of life and death, matters outside the scope of the law, matters that cannot be engineered or manipulated by human effort, matters that are distinctly the domain of God or luck or fate or some other unknowable, incomprehensible force.
Although I did not grow up motherless, I suffered in a different way and understood at an age younger than yours that life is not fair. I looked at all the other kids who could drive and play tennis and who didn’t have to use a magnifying glass to read, and it pained me in a way that maybe you can understand now. People looked at me with pity, too, which I loathed. I was denied opportunities, too; I was always the scorekeeper and never played in the games during PE. My mother didn’t think it worthwhile to have me study Chinese after English school, as my siblings did, because she assumed I wouldn’t be able to see the characters. (Of course, later on, I would study Chinese throughout college and study abroad and my Chinese would surpass my siblings’.) For a child, there is nothing worse than being different, in that negative, pitiful way. I was sad a lot. I cried in my lonely anger. Like you, I had my own loss, the loss of vision, which involved the loss of so much more. I grieved. I asked why. I hated the unfairness of it all.
My sweet babies, I do not have the answer to the question of why, at least not now and not in this life. But I do know that there is incredible value in pain and suffering, if you allow yourself to experience it, to cry, to feel sorrow and grief, to hurt. Walk through the fire and you will emerge on the other end, whole and stronger. I promise. You will ultimately find truth and beauty and wisdom and peace. You will understand that nothing lasts forever, not pain, or joy. You will understand that joy cannot exist without sadness. Relief cannot exist without pain. Compassion cannot exist without cruelty. Courage cannot exist without fear. Hope cannot exist without despair. Wisdom cannot
exist without suffering. Gratitude cannot exist without deprivation. Paradoxes abound in this life. Living is an exercise in navigating within them.
I was deprived of sight. And yet, that single unfortunate physical condition changed me for the better. Instead of leaving me wallowing in self-pity, it made me more ambitious. It made me more resourceful. It made me smarter. It taught me to ask for help, to not be ashamed of my physical shortcoming. It forced me to be honest with myself and my limitations, and eventually to be honest with others. It taught me strength and resilience.
You will be deprived of a mother. As your mother, I wish I could protect you from the pain. But also as your mother, I want you to feel the pain, to live it, embrace it, and then learn from it. Be stronger people because of it, for you will know that you carry my strength within you. Be more compassionate people because of it; empathize with those who suffer in their own ways. Rejoice in life and all its beauty because of it; live with special zest and zeal for me. Be grateful in a way that only someone who lost her mother so early can, in your understanding of the precariousness and preciousness of life. This is my challenge to you, my sweet girls, to take an ugly tragedy and transform it into a source of beauty, love, strength, courage, and wisdom.
The Unwinding of the Miracle Page 1