Thinking in Pictures: My Life with Autism
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When I became interested in something, I rode the subject to death. I would talk about the same thing over and over again. It was like playing a favorite song over and over on the stereo. Teenagers do this all the time, and nobody thinks that it is odd. But autism exaggerates normal behavior to a point that is beyond most people 's capacity for understanding. For example, many people thought the way I perseverated on my door symbols was weird and tried to get me to get rid of them. It took someone like Mr. Carlock to help me channel such fixations.
College and Graduate School
Before I entered college, my mother informed the administration of my problems. The school was close to my old high school and I was still able to see Mr. Carlock on weekends. This was very important for my success. He provided needed support and encouragement while I adapted to life in college. I might not have been able to make it without him.
There were two kinds of college courses: easy ones, like biology, history, and English, and impossible ones, like math and French. Mr. Dion, the math teacher, spent hours with me after each class. Almost every day I went to his office and reviewed the entire day 's lecture. I also had to spend hours with a tutor to get through French. For moral support there was Mrs. Eastbrook, the assistant dean 's wife. She was another one of the unconventional people who helped me. She had wild hair and wore long johns under her skirt. When I got lonely or down in the dumps, I went over to her house and she gave me much-needed encouragement.
College was a confusing place, and I strove to use visual analogies to understand the rules of collegiate society. When I got into college, I made new analogies to augment the simple ideas that I had come up with in boarding school to stay out of trouble. There I had quickly learned which rules I really had to follow and which rules I could bend through careful observation and logic. I developed a simple classification system for rules, which I called “sins of the system. ” A rule designated as a sin of the system was very important, and breaking it would result in severe loss of privileges or expulsion. Students got into serious trouble for smoking and having sex. If a student could be totally trusted not to engage in these two activities, she could break some of the minor rules without any consequences. I designated smoking and sex as sins of the system. Once the staff realized that I would not run off into the bushes and have sex I was never punished for going out in the woods without a staff member. I was never given special permission to go hiking by myself, but on the other hand, I learned that the staff would make no attempt to stop me. I figured out that the teachers and houseparents were much more concerned about smoking and sex, and I learned how to stay out of trouble.
For people with autism, rules are very important, because we concentrate intensely on how things are done. I always took the rules seriously and won the confidence of my teachers. People who trust me have always been a big help. But many people have difficulty deciphering how people with autism understand rules. Since I don 't have any social intuition, I rely on pure logic, like an expert computer program, to guide my behavior. I categorize rules according to their logical importance. It is a complex algorithmic decision-making tree. There is a process of using my intellect and logical decision-making for every social decision. Emotion does not guide my decision; it is pure computing.
Learning a complex decision-making process is difficult. I had a strict moral upbringing, and I learned as a child that stealing, lying, and hurting other people were wrong. As I grew older I observed that it was all right to break certain rules but not others. I constructed a decision-making program for whether rules could be broken by classifying wrongdoing into three categories: “really bad, ” “sins of the system, ” and “illegal but not bad. ” Rules classified as really bad must never be broken. Stealing, destroying property, and injuring other people are in this category, and they were easy to understand. The “illegal but not bad ” rules can often be broken with little consequence. Examples would be slight speeding on the freeway and illegal parking. The “sins of the system ” category covers rules that have very stiff penalties for seemingly illogical reasons. Using my system has helped me negotiate every new situation I enter.
My Aunt Breechen was another important mentor. She was always very tolerant and encouraged me to work with cattle. I fell in love with Arizona while visiting her ranch. My infatuation with the cattle chutes there also provided the motivation that started my career, and I returned there to go to graduate school.
I wanted to do my master 's thesis in animal science on the behavior of cattle in feedlots in different types of cattle chutes, but my adviser at Arizona State University thought that cattle chutes were not an appropriate academic subject. Back in 1974, animal behavior research on farm livestock was a rarity. Once again, my fixation propelled me. I was going to do my survey of cattle behavior in cattle chutes even though the professor thought it was stupid. I then had to seek out a new adviser. Most of the professors in the Animal Science Department thought my ideas were crazy. Fortunately, I persevered and found two new professors, Dr. Foster Burton, chairman of the Construction Department, and Mike Nielson, from Industrial Design, who were interested. With them I figured out my survey methods. An idea that seemed crazy to conservative professors in animal science seemed perfectly reasonable to a construction man and a designer.
My master 's thesis brought together all of my ideas about and fixations on the way things work. I wanted to determine the effect of different squeeze chute designs on the behavior of the animals, the incidence of injury, and the chutes' efficiency The variables I looked at were the breed of the cattle, the design of the squeeze chute, and the size of the cattle. I measured how often the cattle balked and refused to enter the squeeze chute, speed of handling, and things that could injure the animals, such as falling on slippery surfaces and head stanchions that could choke them. To survey the cattle, I stood next to the chute with a data sheet and recorded the behavior of each animal while it was branded and vaccinated.
I then had to punch the data into IBM punch cards for analysis on the mainframe computer in the Engineering Department. When I was at Arizona State University, there were no nice little desktop computers. Keypunching five thousand IBM cards was mind-numbing work, because the data for each animal had to be punched onto an individual card. I would arrive at the keypunch lab before the engineers got there at 6:00 p.m. and punch cards until my bladder gave out. If I left to go to the bathroom, an engineering student would grab my keypunch machine. I became an expert on the keypunch and the card sorter. When the sorter jammed, the engineering students would stand by helplessly while I unjammed it. Often I fixed the machine for them so I could get their cards sorted so I could get back to running mine. I always referred to the decks of cards as my cattle. Visualizing each card as an actual animal made it easier to understand how to sort them into different groups for statistical analysis. For example, I could sort the cards into size categories to see if cattle size affected efficiency. I used to call running the card sorter “sorting cattle. ”
The results of my survey indicated that the design of the equipment affected its operation. Some types of squeeze chutes were more likely than others to injure the steers, and some breeds of cattle were more accident-prone in them than others. I also did a time-motion study to determine the most efficient speed for handling the animals. If a crew tried to go too fast, animals were more likely to become injured and vaccinations were given improperly. Twenty years ago I determined how much time was required to perform vaccinations and other procedures on cattle. These figures are still good today. It is simply impossible to handle the animals faster and do a decent job.
In some ways, I credit my autism for enabling me to understand cattle. After all, if I hadn 't used the squeeze chute on myself, I might not have wondered how it affected cattle. I have been lucky, because my understanding of animals and visual thinking led me to a satisfying career in which my autistic traits don 't impede my progress. But at numerous meetings around the country I have talke
d to many adults with autism who have advanced university degrees but no jobs. They thrive in the structured world of school, but they are unable to find work. Problems often occur at the outset. Often during interviews, people are turned off by our direct manner, odd speech patterns, and funny mannerisms.
Twenty years ago I did not realize how weird I seemed. One of my good friends told me that I was always hunched over, I wrung my hands, and I had an excessively loud, unmodulated voice. I 've had to get everywhere I 've gotten through the back door. Fortunately, I had enough money to live on while I started very slowly pursuing my career on a freelance basis. Once, at an American Society for Agricultural Engineers meeting, I was able to tell that I made a poor impression on two engineers, because they ignored me and refused to discuss engineering with me. They thought I was strange until I yanked out the drawing I had done of the dip vat at John Wayne 's Red River feedlot. They said, “You drew that? ”
People with autism can develop skills in fields that they can really excel in, such as computer programming, drafting, advertising art, cartooning, car mechanics, and small engine repair. Where they really need help is in selling themselves. In many cases, they have a better chance of getting hired if they are interviewed by other computer programmers or draftsmen instead of the personnel department. Likewise, showing a portfolio of work will help convince skeptical employers who are nervous about giving a job to an autistic person. I 've known people who are engaged in satisfying jobs as varied as elevator repair, bike repair, computer programming, graphic arts, architectural drafting, and laboratory pathology. Most of these jobs use the visualization talents that many people with autism have. For instance, a good mechanic runs the engine in his mind to figure out what is wrong with it. People with autism who have savantlike memorization skills are good at cataloguing and reshelving books at the library. Piano tuning is another job they are good at, because many people with autism have perfect pitch.
I still remember taking that vital first step in establishing my credibility in the livestock industry. I knew if I could get an article published in the Arizona Farmer Ranchman, I could go on from there. While I was attending a rodeo, I walked up to the publisher of the magazine and asked him if he would be interested in an article on the design of squeeze chutes. He said he would be, and the following week I sent in an article entitled “The Great Headgate Controversy. ” It discussed the pros and cons of different types of chutes. Several weeks later I received a call from the magazine; they wanted to take my picture at the stockyards. I just could not believe it. It was plain old nerve that got me my first job. That was in 1972. From then on I wrote for the magazine regularly while I was working on my master 's degree.
Publishing articles led to a job of designing cattle chutes at Corral Industries, a large feedlot construction company. I was still living in my visual-symbol world, and I needed concrete representations of advancement in the cattle industry. I wore a green work uniform with cattle pins on the collar like a soldier 's rank insignia. I started out as a private, with bronze cattle pins, and as I became recognized in the industry I awarded myself high-ranking silver or gold cattle pins. I was totally oblivious to the fact that other people regarded my uniform as ridiculous.
Emil Winnisky, the construction manager at Corral Industries, recognized my talents, and he helped me to dress and act more appropriately. He had his secretaries take me shopping for nicer clothes and teach me better grooming. Now I wear a more appropriate western shirt, but I still award myself an advancement in cattle rank and put two silver cattle pins on my collar.
At the time, I resented Emil 's intrusion into my dress and grooming habits, but today I realize he did me a great favor. With much embarrassment I remember the day that he plunked a jar of Arid deodorant on my desk and told me that my pits stank. People with autism need to be counseled on clothing and grooming. Tight or scratchy clothes make paying attention to work impossible, and many cosmetics cause allergic reactions, so each person needs to find stylish, comfortable clothes that do not irritate overly sensitive skin and deodorant and other cosmetics free from perfume (I have severe allergic reactions to perfumes). Shaving is a problem for some autistic men because of tactile oversensitivity, which makes a razor feel like a power sander. Electric razors are often easier to tolerate.
While I was working at Corral Industries I would visit the Swift meat-packing plant once a week. There I met Tom Rohrer, the manager, who was to become one of my most important mentors in the work world. The main thing Tom did for me at first was to tolerate my presence, plain and simple. I was still talking too much, but he put up with me because I figured out clever ways to solve problems, such as using plastic milk hoses to pad the edges of gates and prevent bruises. Gradually the superintendent, Norb Goscowitz, and the foremen took an interest in me. Several times Norb told me that he was advising me the same way he would advise his own daughter.
A year later, I sold Swift the contract to build a new cattle ramp for Corral Industries. During construction of this project, I learned that being technically right was not always socially right. I criticized some sloppy welding in a very tactless way, and the workers got angry. Harley Winkleman, the plant engineer, gave me some good advice. He told me, “You must apologize to the workers before a small problem turns into a big cancer. ” He made me go to the cafeteria and apologize, and he helped me learn to criticize more tactfully.
A year later, I got into more social hassles at the plant, and Tom defended me after I annoyed the president of Swift. I naively believed that every employee who worked there would put loyalty to the company first. The president was embarrassed when I wrote him a letter about mistakes on an equipment installation at another Swift plant. He did not appreciate my finding problems in his operation. From this I learned that loyalty to the best interests of the company was often not the primary motivator for another person 's actions. I will never forget that when the going got really rough, Norb told me, “No matter what, you must always persevere. ”
I quit the job at Corral Industries and continued to write for the Arizona Farmer Ranchman while I started my design business on a freelance basis. Freelancing enabled me to avoid many of the social problems that can occur at a regular job. It meant I could go in, design a project, and leave before I got into social difficulties. I still don 't easily recognize subtle social cues for trouble, though I can tell a mile away if an animal is in trouble.
When a new manager took over the Arizona Farmer Ranchman, I did not realize that he thought I was weird and I was in danger of being fired. A fellow employee told me that he was turned off by me. My pal Susan saw the warning signs, and she helped me assemble a portfolio of all my articles. After the manager saw how many good articles I had written, he gave me a raise. This experience taught me that to sell my services to clients, I always had to have a portfolio of drawings and photos of completed projects. I learned to avoid social problems by limiting my discussions with clients to technical subjects and avoiding gossip about the social life of the people I worked with.
Employers who hire people with autism must be aware of their limitations. Autistic workers can be very focused on their jobs, and an employer who creates the right environment will often get superior performance from them. But they must be protected from social situations they are unable to handle. An autistic man who had successfully worked at an architectural firm for many years was fired when he was promoted to a position that involved customer contact. Another man lost his job at a lab after he got drunk with other employees. Employers need to educate their employees about autism so that an autistic person is not placed in a social situation that he or she can 't handle.
But for every Mr. Carlock or Tom Rohrer, there will always be people who make life difficult. I remember the time when I drove into Scottsdale feed yard and walked up to the door that led into the cattle working area, and a man named Ron put his hand on the door and said that no girls were allowed. Back in the early seventies, no women worked
in feedlots. Today many do, and many yards prefer women for handling and doctoring cattle, because they are gentler than men. But back then I didn 't know which was my greater handicap, being a woman or having autism.
Attempting to get into a man 's world was difficult enough. When I started designing facilities at meat plants, I had my car decorated with bull testicles and was constantly given “gross-out ” tours. I had to get dressed in the men 's bathroom when I worked at the dairy at Arizona State University. At one plant I was shown the blood pit on three separate occasions. During the third walk through the blood, I stamped my feet and splattered it all over the plant manager. He respected me after he saw that I knew how to operate the equipment. What people call sexual harassment today is nothing compared to what I went through.
Though he will never know it, when Ron blocked the door that led to the cattle working area, he instantly transformed a small, insignificant wood door in a fence into a special symbolic door in my pantheon of door symbols. Any event that actually involved a door being blocked seemed like part of a grand plan that God had in store for me. My visual-symbol world enabled me to keep on going. A blocked door had to be conquered. True to form, I was like a bull filled with pure determination. Nothing was going to stop me.
Update: Autism/Asperger 's and Careers
I am very concerned about careers for people with high-functioning autism or Asperger 's syndrome. Since Thinking in Pictures was written, more and more really gifted students are being labeled as having Asperger 's. I am worried that some of these students will have their careers hindered by the label. The students I am most concerned about are the very bright students who are not being challenged at school and who misbehave because they are bored. In some schools these students are kept out of gifted and talented classes due to the Asperger 's label.