Patient Zero and the Making of the AIDS Epidemic

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Patient Zero and the Making of the AIDS Epidemic Page 70

by Richard A. McKay


  amyl nitrite, 22, 101– 2, 325

  89, 194n22, 249, 258; Zero Patience

  Ancienne- Lorette, Québec (Canada), 201,

  and, 251– 58, 259 f. See also gay libera-

  294– 95, 297

  tion movement; and names of specifi c

  And the Band Played On (Shilts), 4, 18–

  groups, e.g. ACT UP

  20, 32, 39– 40, 375; activist resistance

  ACT UP (AIDS Coalition to Unleash

  to, 237– 45; challenges to historical ac-

  Power), 15, 21, 188; call to action of,

  count of, 248– 50, 253– 56, 260, 263– 77,

  225, 226 f; expansion of, 237– 38; protest

  287– 88, 291– 94; critical response to, 78,

  against California Magazine by San

  135– 37, 140– 41, 156n58, 182, 215– 16,

  Francisco chapter of, 238; silence =

  226 f, 237, 253– 54n22, 257; fi lm produc-

  death Project and, 211n74; in Zero Pa-

  tion rights to, 196, 203; on government

  tience, 251, 254– 56

  silence on HIV/AIDS, 160, 194– 95;

  Advocate, The, 32n92, 143– 53, 157

  Halloween party scene in, 166n93, 171;

  Africa: in HIV origin debates, 10– 14, 55–

  as HBO miniseries, 257; impact on leg-

  56, 187; model HIV law for, 236

  islation of, 234– 37; initial print run of,

  420

  Index

  And the Band Played On (Shilts) ( cont. )

  Bay Area Reporter ( BAR), 321– 31

  192; intertextual history of epidem-

  Bayer, Ronald, 16n48

  ics and, 45; naming of individuals in,

  Beatty, Perrin, 264– 65n52

  159n68, 175n132, 226 f, 240– 41, 244–

  beauty and disease, 65– 69

  45; prepublication reviews of, 192– 93,

  “Bed No. 29” (Maupassant), 63– 64

  196; promotion of, 178– 79, 185, 190,

  Bégin, Monique, 261

  192– 207; public response to, 186, 190,

  Bell, Arthur, 317– 18

  203– 6, 217– 29; publisher’s advance for,

  Bennett, William, 230

  162, 179; research for, 139– 40, 166– 78,

  Berkowitz, Richard, 173, 313– 15, 317, 365

  179, 183– 84; San Francisco Gay Free-

  Bersani, Leo, 212

  dom Day parade in, 166– 67, 176– 77; as

  Biennial International AIDS Conference,

  selective truth telling, 141; serializa-

  8n16

  tion and published excerpts of, 194– 95,

  Bisson, Richard, 300, 336– 37, 343, 346

  217, 218 f, 224– 25, 359; Shilts’s proposal

  Black Death. See plague (Black Death)

  for, 161– 65; silence in response to, 206–

  blaming, 39– 40, 156, 227, 239– 40, 254– 56,

  16; as source of subsequent historical

  261, 264– 67, 357– 59; of Dugas, 34, 180–

  accounts, 19– 20, 34, 244– 45, 247n3,

  85, 197– 98, 220, 336– 37, 358, 373; dur-

  284– 88, 291n7; writing of, 178– 85. See

  ing historical epidemics, 10, 45– 65; of

  also Shilts, Randy; Shilts’s portrayal of

  subsequent Patient Zeros, 361– 62. See

  Patient Zero

  also cultural narratives of epidemics;

  antiretroviral drugs, 16, 375. See also com-

  moral condemnation

  bination therapy (HAART)

  blood supply, 195– 96; Canada’s Krever

  antisodomy laws, 24

  Commission on, 20– 21n61, 32, 40,

  arenas of historical production, 264– 67,

  69n87, 246– 52, 258– 88; hepatitis C

  286

  and, 247– 48, 268n61; screening of, 266;

  Armstrong, Russell, 263

  transfusion- acquired HIV/AIDS and,

  Arnim, Bettina von, 64– 65

  3, 165, 195– 96, 230, 236n124, 247– 48,

  Astruc, Jean, 53– 54, 57

  252, 262– 63

  Audley, Mervin (Earl of Castlehaven). See

  Blumberg, Nathan, 147

  Castlehaven, Earl of (Mervin Audley)

  Body Politic, 23, 209, 250, 325, 330

  Auerbach, David, 98, 105– 9, 112– 13, 118,

  Bolan, Bob, 42

  363. See also Los Angeles cluster study

  Bouquet, Henry, 63

  authorial subjectivity, 38– 39

  Bowers v. Hardwick decision, 23

  Brandt, Allan, 83

  Bacon, Francis, 53

  Brandt, Edward N., Jr., 132, 315

  bacteriological theory of disease, 70, 75

  Brier, Jennifer, 249

  Baldwin, Peter, 19– 20

  Briggs, John V., 97– 98n61

  Band (Shilts). See And the Band Played

  Brown, Kevin, 175– 77, 183, 228– 29, 341

  On (Shilts)

  Brown, William J., 86– 87

  Barnes, Rosemary, 341n168

  Bryant, Anita, 24, 97– 98n61

  Barré- Sinoussi, Françoise, 17n49

  Buchanan, Patrick, 45

  bathhouses, 64, 104, 117, 369; concerns

  “Burning of the Plague Spreaders” (Nohl),

  about PWAs’ presence in, 57, 172– 73,

  61 f

  181–82, 208n65, 316– 19, 321– 31; Dugas’s

  patronage of, 43, 167– 68, 174, 208, 240,

  Cadorino, Lucia, 52

  311– 12, 336– 37, 343– 44; Shilts’s report-

  California Magazine, 194– 95, 217, 224– 25,

  ing on, 145n20, 160– 61; in Toronto, 24,

  226 f, 231, 238, 253

  249– 50, 265, 301; in Zero Patience, 255

  Callen, Michael, 117; Shilts’s interview

  Bauer, Gary, 230– 32

  with, 171– 73; writing on AIDS by, 313–

  Bauer family, 165

  17; in Zero Patience, 255

  Index

  421

  Campbell, Bobbi, 325

  ory of, 17, 315, 317; STDs and immune

  Campbell, Duncan, 35– 36n98, 135– 37,

  overload theory of, 313– 15, 325, 373,

  226 f, 253– 54n22

  375. See also transmission of causative

  Campylobacter, 99

  agent of AIDS

  Camus, Albert, 164, 166

  Centers for Disease Control (CDC), 78n5,

  Canada, 20– 27, 246– 88; AIDS activism

  343– 44; AIDS Task Force of, 1– 3, 22,

  in, 175n132, 188, 201, 208– 9, 239, 249,

  32; communication with Canadian pub-

  260– 62, 265, 331– 37, 345– 47; AIDS

  lic health offi cials of, 274– 84, 364; early

  memorials in, 241– 43, 354; AIDS pol-

  AIDS research of, 40; Epidemic Intel-

  icies in, 21, 232, 276– 80; awareness

  ligence Service investigators of, 82– 83,

  of Dugas in, 277– 80; bathhouse raids

  92– 94, 119– 20, 276; Field Manual of

  and arrests in, 249– 50; Body Politic

  the Venereal Disease Division of, 92–

  trial in, 209; challenges to accounts in

  94; interviews with Dugas by, 19, 35, 43,

  Band in, 248– 50, 253– 56, 260, 263–

  195, 281– 83, 310– 13; Kaposi’s Sarcoma

  77, 287– 88; decriminalization of ho-

  and Opportunistic Infections Task

  mosexual activity in, 94– 95, 299; early

  Force of, 81, 82, 98– 105, 279; patient

  AIDS cases observed in, 22, 25, 189,

  confi dentiality policies of, 210, 279n81;

  275n67; emergence of urban gay com-

  population-
based epidemiology meth-

  munities in, 299– 301; homophobia in,

  ods of, 83– 84; single- agent theory of,

  24– 25; incidence of HIV/AIDS in, 189,

  3n7; STD control campaigns of, 82– 84,

  247; Krever Commission on blood sup-

  90, 94– 95. See also creation of Patient

  ply of, 20– 21n61, 32, 40, 69n87, 246–

  Zero; Los Angeles cluster study

  52, 258– 88; Laboratory Centre for Dis-

  Centre for Investigative Journalism (CIJ),

  ease Control of, 274– 77, 282– 83, 284;

  139– 40

  media coverage of Patient Zero story

  Chabner, Bruce, 1– 3, 7, 9– 10

  in, 198– 202, 205, 207– 10, 318– 20, 326–

  Cheese and the Worms, The (Ginzburg),

  37; National Advisory Committee on

  294n14

  AIDS in, 189, 261; public health sys-

  Chicago Tribune, 218 f

  tem of, 273– 88, 364; SARS outbreaks

  cholera, 70, 74– 75, 108n93

  in, 360; stories of deliberate spreading

  Christopher Street, 155, 191, 237n126

  of disease in, 319– 21, 331– 42, 351– 52;

  civil rights. See patient rights

  transfusion- acquired HIV in, 247– 48,

  Clayton, Alastair, 261, 274– 77, 282– 83

  252, 262– 63

  cluster testing method, 79– 81, 90– 92, 120;

  Canadian AIDS Society (CAS), 247, 258,

  infl uence on the LA study of, 84– 87;

  260, 262– 64

  visual representations of, 123– 38

  Canadian Hemophilia Society, 263, 265

  Coleman, James, 130, 131 f

  Canadian 100, The (Rawlinson and

  Coleman, William, 46n11, 108n93

  Granatstein), 286

  Colton, Greg, 54n45

  Canadian Red Cross, 262– 63, 266

  combination therapy (HAART), 16, 249,

  Candide (Voltaire), 56– 57, 133– 34

  287– 88

  candidiasis, 9

  Commission of Inquiry on the Blood

  carriers, 30n88, 42– 45, 69– 76, 292– 93

  System in Canada. See Krever

  Carter, Jimmy, 29

  Commission

  Case/Patient 57, 104– 9, 108– 9, 110 f, 126 f,

  Conant, Marcus, 165; on challenges fac-

  127 f, 298, 310– 12. See also creation of

  ing gay physicians, 340; on Dugas, 168–

  Patient Zero

  69, 310, 313, 337, 341; early activism of,

  Castlehaven, Earl of (Mervin Audley), 50

  42, 117, 308, 323– 24, 328– 29; on the LA

  causation models of AIDS, 293– 94, 308– 9;

  cluster study, 77; Shilts’s contact with,

  multifactorial models of, 118– 19, 314–

  157, 168– 69, 177– 78

  15n83, 353; single- agent (virus) the-

  condom use, 312n73, 340

  422

  Index

  confi dentiality. See patient rights

  51– 57, 67, 108n93, 355– 62; Patient Zero

  Conn, Desiree, 219, 302, 304, 343n175

  in, 44, 67. See also creation of Patient

  Conners, Janet, 280n83

  Zero; signifi cance of Patient Zero

  contact epidemiology, 83– 84, 138

  Curran, James, 22– 31, 99; on incubation

  Contagious (Wald), 204

  periods, 121– 22; LA cluster study pre-

  Cosmographia (Münster), 58– 59, 60– 61 f

  sentation of, 1, 4n9, 15, 125 f, 132

  Coulter, Harris L., 237

  Cutts, Greg, 333, 335n146

  Courte, Bernard, 239– 40

  cytomegalovirus (CMV), 9, 99, 102, 314, 325

  creation of Patient Zero, 1– 4, 10, 19– 20,

  355– 62; absence of patient’s viewpoint

  Dague, Paul, 323– 24

  in, 4, 30– 41, 291– 94, 352– 53; activist re-

  Damski, Jon- Henri, 238– 39

  sistance to, 237– 45; challenges to dom-

  Dancer from the Dance (Holleran), 64

  inant narrative of, 77– 78, 103, 248– 50,

  Darrow, William, 78– 81, 84– 87, 90, 96–

  253– 56, 260, 263– 77, 287– 88, 291– 94;

  138, 363, 365; on identifying a source,

  consequences of, 39, 110– 16, 130– 32,

  107– 16; on incubation periods, 226 f;

  229– 37; in cultural narratives of epi-

  inter views in Los Angeles by, 105–

  demics, 44, 67; cultural signifi cance

  7; on interview techniques, 92; KS/OI

  of, 3– 4, 39– 40; defi ning Patient Zero

  Task Force and, 98– 105; meetings with

  in, 3n8, 280– 81, 286– 87, 356, 359, 360;

  Dugas of, 195, 310– 13; on misrepresen-

  Dugas’s photographs and, 194, 212– 13,

  tation of the LA cluster study, 137; on

  214 f, 219, 221– 24; early researcher at-

  “Patient O,” 210n71; reported repudi-

  tention to, 1– 3, 27– 31; impact on pub-

  ation of the LA cluster study by, 137,

  lic health policies of, 229– 37, 364; in-

  226 f, 238; VD research of, 96– 98; vi-

  dex cases and, 84n16, 111– 12, 287; in

  sual schematics of data of, 124– 38; in

  the LA cluster study, 79– 81, 107– 16,

  The Zero Factor, 124n129. See also Los

  122n125, 123– 38, 199, 212– 13, 278–

  Angeles cluster study

  79, 291, 356– 57, 363; in the Los Ange-

  Dartmouth, Nova Scotia (Canada), 304

  les Herald Examiner article, 113n100,

  Davidson, Roger, 89n29

  114 f; national variations of, 358– 59; ori-

  Davies, D. S., 72– 74

  gins of idea of, 3, 39; Pepin’s account of,

  deaths from HIV, 7, 15

  14; promotion of Band and, 192– 207;

  decriminalization of homosexuality, 94–

  public reaction to, 217– 29; silence in re-

  95, 299

  sponse to, 206– 16; transmission of dis-

  Defoe, Daniel, 62, 319

  ease and, 27– 30, 229– 37. See also And

  Delaporte, François, 5– 6n13

  the Band Played On (Shilts); Dugas,

  deliberate spreading of disease, 57– 65,

  Gaétan; Shilts’s portrayal of Patient

  229– 35; charges against Dugas of, 57,

  Zero; signifi cance of Patient Zero

  75– 76, 232– 37, 317– 42; gay commu-

  Crenshaw, Theresa, 231n106, 235

  nity fear in, 351– 52. See also creation

  criminalization of HIV transmission,

  of Patient Zero

  229– 37

  Demme, Jonathan, 256

  Crimp, Douglas, 140– 41, 291

  Democratic Republic of the Congo (for-

  cultural narratives of epidemics, 42– 76,

  merly Zaire), 10– 13

  319; beauty and disease in, 65– 69; de-

  De morbis venereis (Astruc), 53– 54

  liberate spreading of disease in, 57–

  Denneny, Michael, 155, 363; commission-

  65, 75– 76, 220– 35, 317– 42, 351– 52; di-

  ing of Band by, 162; promotion of Band

  vine punishment and scapegoating in,

  by, 178– 79, 185, 190, 192– 97; publishing

  45– 51, 180– 82, 229– 37, 265– 67; fear of

  career of, 155n53, 190– 92; on Shilts’s

  strangers and outsiders in, 48, 75, 174,

  characterization of Dugas, 182, 237; on

  318, 320– 21, 328, 344, 351, 374; healthy
>
  the success of Band, 186, 204n53

  carriers in, 30n88, 42– 45, 69– 75, 292–

  detective work of epidemiology, 71– 73, 82–

  93; identifi cation of origins in, 46– 47,

  84, 92– 94, 112– 15, 215

  Index

  423

  Detorie, Daniel, 153– 54

  349– 52, 366– 76; preferred gay estab-

  Diagnostic and Statistical Manual of Men-

  lishments of, 311– 12; public identity as

  tal Disorders (APA), 23– 24, 95

  KS patient of, 331– 37; public opinion

  diphtheria, 70

  of, 42– 45, 58– 59, 63– 64n67, 75– 76, 175–

  Disease and Democracy (Baldwin), 19– 20

  76, 217– 29, 291; sense of humor of, 183,

  disease process of HIV, 8– 9

  299; sexuality of, 301– 3, 330, 332, 336–

  divine punishment, 45– 51

  45, 371, 373, 375– 76; on transmissibil-

  Dobko, Theresa, 239

  ity of disease, 75, 177, 195, 232– 33, 291,

  “Doctor Helped Track Down Sexual

  293– 94, 312– 14, 315– 16, 329– 31, 336–

  Link . . .” (Nordwind), 113n100, 114 f

  37, 341– 42, 353; travel, mobility, and

  Dritz, Selma, 120, 165; on banning PWAs

  residences of, 27, 28n81, 244– 45, 297–

  from the baths, 318; on meeting with

  303. See also And the Band Played On

  Dugas, 167– 68, 232, 329– 31, 337; on

  (Shilts); creation of Patient Zero; pa-

  “Patient O,” 109, 110 f, 169, 174, 212;

  tient viewpoint accounts; Shilts’s por-

  Shilts’s interviews of, 151, 157, 167– 70,

  trayal of Patient Zero

  174, 329– 30

  Dugas family, 35– 37, 294– 303, 349, 374;

  Dr. X, 337– 39

  impact of Patient Zero story on, 197,

  Duesberg, Peter, 17n51

  198n33, 201– 2, 205, 210– 11, 215; pri-

  Dugas, Gaétan, 4, 19– 20; AIDS memorials

  vacy considerations for, 36– 37, 290n6;

  and, 241– 43, 366; at the AIDS Vancou-

  threats faced by, 35n98, 36

  ver meeting, 313, 331– 36; in The Cana-

  duration of HIV/AIDS illness: in compro-

  dian 100, 286; Canadian public health

  mised immune systems, 122n126; early

  system’s awareness of, 277– 80; CDC

  estimates of, 100, 117, 260; genetic di-

  interactions with, 19, 35, 43, 195, 281–

  versity in, 122n125; incubation period

  83, 310– 13, 343– 44; characterization

  estimates in, 120– 22, 132, 135– 38, 167,

  as “sociopath” of, 43– 44, 139, 181– 82,

  226 f; progression to death in, 347– 48

  184, 195, 224 f, 291, 341– 42; charges of

  deliberately spreading disease against,

  Ebola, 359, 361– 62

  57, 75– 76, 232– 37, 317– 42, 351– 52, 373;

 

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